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Maya's Hope: Formula, medicine and more for baby with hydrocephalus and lissencephaly pachygyria 2
Maya's Hope: Formula, medicine and more for baby with hydrocephalus and lissencephaly pachygyria 2

$411

Raised

Donations

$400

Goal

Zhanarah is one year old and is diagnosed with global development delay, Hydrocephalus, and lissencephaly pachygyria. (see definition below)



In just one year, Zhanarah had to undergo numerous medical examinations and hospital visits to find out what was happening to her. She has a persisting cough that leaves her in pain and sometimes even makes her have a seizure.

Doctors have prescribed Zahara medications to relieve her cough, but after some time of improvement, the child typically gets worse again, leaving her parents confused and scared for her life.


The parents are doing their best to get some help for their baby girl, but they can barely make enough to survive. The family doesn’t even have a ceiling over their head - they only have a roof supported by a branch and have to hang up their clothes on that branch when it rains to prevent the house from flooding. The father’s side of the family is currently trying to help them but in the form of loans, which means that the young parent’s debt keeps rising.


Fortunately, the doctors prescribed the family a new medication to help Zhanarah breathe. But to receive this life-saving medication, Zhanarah, and her parents need your help. The family is already in debt, they are trying to save up and find money by all means possible, and they have reached out to Maya’s Hope for support. This family is a force that is doing whatever it can to save Zhanarah.


And today, this family needs you. Can we count on your donations for Zhanarah?

The lissencephaly-pachygyria spectrum is a useful way to describe the spectrum of diseases that cause relative smoothness of the brain surface and includes 1:

agyria: no gyri pachygyria: broad gyri lissencephaly: smooth brain surface It is a basket term for a number of congenital cortical malformations characterized by absent or minimal sulcation. https://radiopaedia.org/articles/lissencephaly-pachygyria-spectrum-2?lang=us


Children in the Philippines who live in extreme poverty lack access to quality healthcare. They are often denied assistance and are unable to afford necessities to improve their quality of life.


Maya’s Hope helps disadvantaged children living in poverty and helps provide hope by instilling value and purpose in each child. We are celebrating 10 years of bringing hope to children around the world.