Long Covid Toolkit
$13,441.69
Raised
50
Donations
$94,600
Goal
Help people with long Covid get their life back. Over 65 million people suffer from long Covid. The Long Covid Toolkit helps people find safe and effective treatments for long Covid.
People with long Covid struggle to find help and information to get better. Many report symptom relief from using supplements, medications or lifestyle adaptations.
The Long Covid Toolkit will inform and empower patients and their treatment providers in finding strategies that work for them. We make scientific and medical information actionable and combine this with the experiences of people with long Covid and their healthcare providers.
The Long Covid Toolkit will provide information on long Covid symptom management options including:
* Supplements & medications
* Pacing & lifestyle adaptations
* Diagnostic tests and self-assessment for frequent symptoms and problems like POTS and PEM
The Long Covid Toolkit is not for profit and will be available for free. See the Long Covid Toolkit website for more information and the project plan.
About us
The Long Covid Toolkit is founded by an epidemiologist/psychiatrist (Joanneke van der Nagel) and a project manager (Edo Plantinga) that both have long Covid. The Toolkit will be built by a team of scientists, medical doctors and ICT specialists, many of whom have struggled with long Covid themselves.
Help us to build and launch the Toolkit and help 65 million people get their life back!
Endorsements:
“I think the toolkit will be a valuable source of knowledge that is currently missing”
Merel Hellemons, MD/Ph.D. - Clinical epidemiologist, pulmonologist and long Covid researcher
“This project can fulfill an urgent need for people with Long Covid.”
Dr. Margaret O’Hara - Founding trustee of Long Covid Support, author on long Covid in Nature, BMJ, etc. Has long Covid.
“The Long Covid Toolkit is exactly what we were waiting for.”
Femke van Rhijn, MD - Rheumatology resident, has long Covid
“The Toolkit can help patients to better work on improvement of their condition.”
Ellen Bark - Chair of Long Covid Nederland Foundation
“An innovative way to combine existing scientific evidence with patient experiences.”
Ingrid Geesink, Ph.D. - Advisor and researcher in the field of health science and technology, ME/CFS and health data re-use
Donor Wall13
Bert | 25 €
Katrin | $100
Toll, vielen Dank! Unser Sohn ist 15, es wäre ganz toll, wenn auch für Kinder viele Infos zusammenkämen!
Frank | 20 €
Heel goed initiatief!
Mieske
Anonymous
respect voor de initiatiefnemers en dankbaar
Angelique Janssens
Eddy
JJ
Lars de Jong | 50 €
Daan Rijnvis | 10 €
Mooi initiatief, heel waardevol en passend bij de tijd waarin we leven. Veel mensen met long covid zoeken zelf naar behandelmogelijkheden, wat in mijn ogen erg positief is. Een betrouwbaar, wetenschappelijk onderbouwd platform zoals de toolkit is een geweldige en vooral veilige stap naar meer mogelijkheden voor long covid patienten. Groetjes Daan, long covid patient.
Alexis Gilbert | $20
Dutch Crowdfunding campaign | $11,568
Guido Nagtegaal | 25 €