Long Covid Toolkit
8.003,93 €
Raised
28
Donations
71.000 €
Goal
Help people with Long Covid get their life back!
Everyone knows family members, friends, colleagues or acquaintances who have been affected by Long Covid. Millions of people around the world suffer every day from symptoms such as extreme fatigue, headache, muscle pain, shortness of breath, and brain fog.
The disease has a huge impact on their lives and the lives of their loved ones. Many have lost their jobs, others can no longer care for their children and some have even been confined to bed for years. Long Covid doesn't just affect health—it dismantles entire lives.
We cannot and must not accept this. To make life better for people with Long Covid, we are developing the Long Covid Toolkit. Help us help them, donate now and make a difference for everyone living with Long Covid.
What is the Long Covid Toolkit?
The Toolkit will be an easy-to-use knowledge base of treatments and ways to reduce symptoms. Some treatments can even be carried out at home and independently.
The Toolkit will contain expert reviews and experiences from doctors and patients about:
- Medicines and supplements
- Pacing, physiotherapy & other treatments
- Diagnostic questionnaires for common symptoms and conditions such as PEM and POTS.
Please help
We're already well on our way to launching the Toolkit in 2025 - help us get to the finish line! We have raised €250,000 in government funding and sponsorship, but we ask for your support to complete the Toolkit. We are still € 71,000 short to test the developed tools with patients and doctors, complete the web application and launch the first version of the Long Covid Toolkit.
Your contribution will make a big difference for people with Long Covid. Help them get their lives back and donate now!
Recommendations from experts and patients
The Long Covid Toolkit was founded by us, two people with Long Covid: epidemiologist and psychiatrist Dr. Joanneke van der Nagel and project manager Edo Plantinga. We experience the consequences of Long Covid in our own bodies every day and want to help our fellow sufferers to have a better life. Scientists and medical professionals from all over the world, web development specialists and volunteers have united in the Long Covid Toolkit Foundation and support and help us to develop the Toolkit.
“I highly support this initiative because it is important to combine patient experience with scientific knowledge.”
- Professor Diederik Gommers, MD/PhD | Professor Intensive Care Medicine at Erasmus MC, Rotterdam & former member of national Covid-19 outbreak management team
“I think the toolkit will be a valuable source of knowledge that is currently missing”
- Merel Hellemons, MD/Ph.D. - Clinical epidemiologist, pulmonologist and long Covid researcher
“This project can fulfill an urgent need for people with Long Covid.”
- Dr. Margaret O’Hara - Founding trustee of Long Covid Support, author on long Covid in Nature, BMJ, etc. Has long Covid.
“The Long Covid Toolkit is exactly what we were waiting for.”
- Fen van Rhijn, MD - Rheumatology resident, has long Covid
“The Toolkit can help patients to better work on improvement of their condition.”
- Ellen Bark - Chair of Long Covid Nederland Foundation
Want to know more? View our website or the frequently asked questions about this crowdfunding.
Please help promote this campaign.
Donor Wall8
Marieke | €30
Bas | €100
Yvonne Bunnik | €50
Peter Hulshof | €20
So necessary!
Jeroen Wijnhout | €50
Lars | €25
Jan | €20
Uitstekend initiatief, veel succes!
Bart Timmers | $25