Reagan's story started 3 years ago. Out of nowhere, something went really wrong inside his skull. He started to have a very loud and weird crunching noise inside his head during every single swallows and it came with sharp pain. At the beginning He did not pay much attention, he thought it would go away. But it got worse day by day, and very soon this crunching became so loud that can be easily heard by external auditors as well. The pain got also so unbearable that we immediately had to take Reagan to start seeing specialists and taking heavy drugs in order to survive. This was the point where the real misery started.
Reagan is a 6 years aged boy from the northen part of Uganda.
Although all the doctors heard this unbelievably loud crunching sensations from his skull, it is obviously objective, nobody knows what is this. he has seen countless doctors, neurologists, oral surgeons, neurosurgeons etc etc and has had hundreds of tests, MRI-s,CT-s taken several steroids, drugs over the years but nothing helped.
His condition became so bad that slowly Reagan lost everything starting from his friends, happiness, school and whole life. Due to the heavy pain and the noise inside, Reagan has not been able to sleep more than 4-5hours each night for 3years now, he can not eat, he had to avoid even drinking because it naturally comes with swallowing which in this case comes with the pain and crunching. It literally feels like there is a huge bomb exploding inside every single minutes or a knife is stabbed into his brain through his ears. This has forced Reagan to spend appr.80% of his time in bed for 3years now due to the heavy pain and exhaustion.
2years ago we found an extremely emphatic and amazing local doctor who has been fighting for him since then. Since then Reagan has had several surgeries and spent plenty of time in hospitals.He had catheter placed inside his inner ears, got different kind of injections into the inner ear area while trying to manipulate some inner muscles, and so many other procedures. We cannot even go into more details, it is a hell and nightmare what he has been going through but nothing has helped so far except of some temporary small relieves which gave him strength to keep going.
As his rare condition is still not even diagnosed, we searched for help around the world.This was though very challenging due to the nature of my sickness and the Covid lockdowns.
We have finally found a worldfamous inner ear and skull base surgeon in Boston, who is very interested in Reagan's case. We have been in contact with him for many months,he is truly amazing, and now there is a chance finally to get to him for a personal visit. He is all Reagan's hope now.
On the other hand, as you might know, medical treatments in the USA are extremely expensive and very hard to arrange. As Reagan doesnt even have a proper diagnosis yet, his first visit would be a very comprehensive examination, including special tests and some minimal-invasive medical treatment attempts.
This Boston visit is way too expensive for us to cover. Flight tickets, accomodation, medical tests , and possible intervention etc. As a first round Reagan would need approximately 34,800USD. We just want to get to him and maybe/hopefully everything will be solved. Since Reagan is a minor and due to his condition , He will need an attendant to travel along with him.
Every single small amount you could offer for Reagan's case, would be a great help or if you can not afford to donate, please share this story among your friends.
Reagan was a happy and positive boy, full of life, with great friends and family but now he is just a vegetative zombi who barely even exist day by day but who is still strong and a fighter. He wants nothing more in this life, just to finally have a painfree and silent skull like everyone else has. He would be the happiest person on this planet if he could get back his amazing life and his hope for this lives in Boston.
We are begging you, please support us with whatever way you can.