Help Fund the Cure for WWOX

A$242,216.96

Raised

Donations

A$300,000

Goal


Children across the world are struggling. Each day they struggle to breathe, to see, to eat, to sleep, to walk and to talk. They suffer from onslaughts of countless seizures and fail to develop as a typical child.

The cause is hidden deep in their DNA in a gene called WWOX. Mutations of the WWOX gene is the cause of 2 devastating diseases, WOREE (WWOX-related Epileptic Encephalopathy) and SCAR12 (Spinocerebellar Ataxia-12). There are only 58 known cases of WOREE and SCAR12 worldwide. These diseases are stealing the futures of these children. The average lifespan of children with severe cases of WOREE syndrome is only 4 years of age.

But there is Hope. Researchers from around the world have banded together to find a cure. Recent laboratory testing has proven that mice with a WWOX mutation can be cured using a gene therapy treatment. However, funding for the research has been completely exhausted. Due to the extreme rarity of this disease funding is hard to come by and we need caring individuals such as yourself to help the cause.

-AUD $200,000 is required to complete the vital preclinical research and trial and a further,
-AUD $100,000 is required for the preclinical data to be reviewed and documented with the assistance of a third-party organisation to gain regulatory approval to proceed with a clinical trial.

Will you help provide hope for these children and their families by donating to the WWOX foundation?

There is no administrative overhead and each dollar donated goes directly to this life-saving research.


For more information about WWOX diseases and the WWOX Foundation please visit wwox.org


WWOX FOUNDATION LIMITED (ABN: 90639202323) is registered with the Australian Charities and Not-for-profits Commission as a Health Promotion Charity. To ensure 100% of your donation goes towards research, you'll have the choice to cover the fees associated with your transaction before submitting. All donations over $2 are tax-deductible.

Our donors

P

Patricia

donated

A$73.12

CT

Christine Twyford

donated

£104.08

For Harry, you light up my mornings with your winning smile little man. A very special part of my day.

D

Anonymous

donated

$5,192.42

KP

Karen Pratt

donated

$51

Second donation on behalf of Luke and Jack’s abuelito Rodolfo

A

Alex

donated

£5.43

HN

Herisha Naidoo

donated

R2,000

For my darling Neyamiah,sending you lots of love 🌺God bless you my angel 😇

EV

Emma Veen

donated

A$52.35

For Sammy, Tim & little Macy xxx

RD

Rod Druce

donated

A$104.27

Hi Sammy & Macy I hope this helps, all our love, Rod & Lee-Anne

P

Peter

donated

A$208.11

For Sammy and Macy from PC

N

Webb & Brown-Neaves

donated

A$21.19

For beautiful Macy

GD

Guy Damiano

donated

A$104.27

for Sammy, Macy & Tim

MD

Michael Dos Santos

donated

A$52.36

For Macy, Sammy and Tim

NB

Niall Blaney

donated

A$31.59

NS

Natalie Sawford

donated

A$31.59

J

Jaspreet

DC

Danielle Chauveau

donated

A$21.20

H

Harjit

donated

£10.62

Amazing work for a great cause!! The Christmas decorations are beautiful Laura. Lots of love, Harjit xx

ER

Elizabeth Roberts

donated

£300

Second instalment of money raised from selling reindeer decorations

LB

Lauren Birkhead

donated

A$30

G

Georgie

For Macy, good luck Sammy & Tim

SL

Shannon Lloyd

donated

A$31.59

For Sammy, Tim & Macy. Lots of love xx

VD

Vanessa Di Cicco

donated

A$31.59

Wishing Sammy, Tim and Macy all the best, x.

PJ

Phil Johnson

donated

A$52.37

for Sammy , Tim and Macy xx

ER

Elizabeth Roberts

donated

£200

Money raised from the Temple Spa evening 🥰

R

Refiloe

donated

R628.15

Miah...My warrior Queen-Just like her mother

NM

Nick Monzu

donated

A$208.12

For Macy, Sammy and Tim

K

Karen

donated

$52.23

On behalf Abuelito Rodolfo, for his grand babies Luke and Jack

DA

Alcock Family Foundation

donated

A$1,038.86

SR

Suzie Richards

R

Rick

donated

A$21.20