Help Fund the Cure for WWOX

A$242,216.96

Raised

Donations

A$300,000

Goal


Children across the world are struggling. Each day they struggle to breathe, to see, to eat, to sleep, to walk and to talk. They suffer from onslaughts of countless seizures and fail to develop as a typical child.

The cause is hidden deep in their DNA in a gene called WWOX. Mutations of the WWOX gene is the cause of 2 devastating diseases, WOREE (WWOX-related Epileptic Encephalopathy) and SCAR12 (Spinocerebellar Ataxia-12). There are only 58 known cases of WOREE and SCAR12 worldwide. These diseases are stealing the futures of these children. The average lifespan of children with severe cases of WOREE syndrome is only 4 years of age.

But there is Hope. Researchers from around the world have banded together to find a cure. Recent laboratory testing has proven that mice with a WWOX mutation can be cured using a gene therapy treatment. However, funding for the research has been completely exhausted. Due to the extreme rarity of this disease funding is hard to come by and we need caring individuals such as yourself to help the cause.

-AUD $200,000 is required to complete the vital preclinical research and trial and a further,
-AUD $100,000 is required for the preclinical data to be reviewed and documented with the assistance of a third-party organisation to gain regulatory approval to proceed with a clinical trial.

Will you help provide hope for these children and their families by donating to the WWOX foundation?

There is no administrative overhead and each dollar donated goes directly to this life-saving research.


For more information about WWOX diseases and the WWOX Foundation please visit wwox.org


WWOX FOUNDATION LIMITED (ABN: 90639202323) is registered with the Australian Charities and Not-for-profits Commission as a Health Promotion Charity. To ensure 100% of your donation goes towards research, you'll have the choice to cover the fees associated with your transaction before submitting. All donations over $2 are tax-deductible.

Our donors

DN

David Nylander

donated

A$73.13

Thinking of you Tim, Sammy and little Macy

AR

Andy Ringin

donated

A$104.28

Prayers up, Sammy, Macy & family!

SS

Shaminder Sahota

donated

£10

Good luck with the fundraising Shaminder :)

PN

Philip Newbury

donated

A$8.22

Phil newbury reindeer

ER

Elizabeth Roberts

donated

£10

On behalf of Dorothy and David x

CM

Christina Mehinagic

donated

$22

For the Pratt family. Praying for you ❤️

J

Jose Miguel

God Bless you Lucia

SR

Sarah Rooskrantz

donated

R500

The Favor of God, His Hands of Protection and Healing be upon Neyamiah and all the other 57 children. Guide and Direct the doctors to perform a excellent and Miracle job on our little children in Jesus Name Amen🙏🙏Glory to God 🙌👏

S

Solange et Jérôme

donated

€311.79

Pour Mathéo, Robin et les autres enfants.

SJ

Sunera James

donated

R200

4 all the WWOX Warriors❤️

AL

Association Les rêves d'Emmy

donated

€50

De la part de M. et Mme FUSTEC, pour Emmy, qu'une remède soit réel pour les enfants WWOX

J

Jason & Nina

donated

A$104.28

For Macy

S

Stephen

donated

$200

On behalf of Cindy Pugsley and the Sekisui Aerospace Paint Shop in Renton

ER

Elizabeth Roberts

donated

£421

First instalment if money raised from selling reindeer decorations!! Keep fighting everyone!!

A

Anne

donated

€1,038.68

Pour Gabrielle et tous les autres petits guerriers. We fight together !

NS

Nelma Sanjines

donated

A$500

With love to all the WWOX warriors!

A

Adrian & Vicki

donated

£150

For 2 amazing boys, Harry & George x

CA

Anonymous

donated

A$31.59

KS

FAMILIA Y AMIGOS DE BOLIVIA

donated

A$1,000

To all WWOX fighters from Lucia's family and friends in BOLIVIA (Beatriz, Brianna , Tatiana y Mildred)

R

Anonymous

SV

Sonja Voice

donated

$52.23

S

Sheena and Jason

For our friends’ boys: Luke and Jack 💙

B

Bé et Nico

Pour Mathéo, Robin et tous les enfants WWOX du monde entier. Pour que la thérapie vous soit profitable au plus vite!

MA

Mathéo & Robin Aune

donated

€207.95

Pour Mathéo, Robin et leurs petits amis autour du globe.

M

Monique

donated

A$208.12

For beautiful baby Macy 💗

AY

Waypoint Pediatric Therapies

For 2 beautiful boys Luke and Jack and all children with WWOX

C

Maple and Lark

donated

$52.23

J

Jeffrey

donated

A$104.28

AL

Association Les rêves d'Emmy

donated

€1,000

De la part de l'association "les enfants de Trestel", pour Emmy et tous les enfatns WWOX

J

Juana

donated

A$52.36

With love for the brave little baby Macy. Our prayers are with you and all the WWOX warriors for the cure to be found soon.