Help Fund the Cure for WWOX

A$74,319.22

Raised

Donations

A$300,000

Goal


Children across the world are struggling. Each day they struggle to breathe, to see, to eat, to sleep, to walk and to talk. They suffer from onslaughts of countless seizures and fail to develop as a typical child.

The cause is hidden deep in their DNA in a gene called WWOX. Mutations of the WWOX gene is the cause of 2 devastating diseases, WOREE (WWOX-related Epileptic Encephalopathy) and SCAR12 (Spinocerebellar Ataxia-12). There are only 58 known cases of WOREE and SCAR12 worldwide. These diseases are stealing the futures of these children. The average lifespan of children with severe cases of WOREE syndrome is only 4 years of age.

But there is Hope. Researchers from around the world have banded together to find a cure. Recent laboratory testing has proven that mice with a WWOX mutation can be cured using a gene therapy treatment. However, funding for the research has been completely exhausted. Due to the extreme rarity of this disease funding is hard to come by and we need caring individuals such as yourself to help the cause.

-AUD $200,000 is required to complete the vital preclinical research and trial and a further,
-AUD $100,000 is required for the preclinical data to be reviewed and documented with the assistance of a third-party organisation to gain regulatory approval to proceed with a clinical trial.

Will you help provide hope for these children and their families by donating to the WWOX foundation?

There is no administrative overhead and each dollar donated goes directly to this life-saving research.


For more information about WWOX diseases and the WWOX Foundation please visit wwox.org

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    WWOX FOUNDATION LIMITED (ABN: 90639202323) is registered with the Australian Charities and Not-for-profits Commission as a Health Promotion Charity. To ensure 100% of your donation goes towards research, you'll have the choice to cover the fees associated with your transaction before submitting. All donations over $2 are tax-deductible.

    Donor Wall133

    Elizabeth Roberts | £30

    On behalf of Gerry Humphries - for Harry, George and all the WWOX warriors

    Anonymous | A$13,233.81

    For Luke and Jack and all the WWOX Warriors!

    Parisa David | £5.43

    Jane and Matt | £5.43

    Rob | A$73.12

    For little Macy.

    Association Les rêves d emmy | 1.000 €

    De la part de l association les enfants de trestel

    Mt. Hawthorn | A$55

    Renee | A$31.58

    Brooke | A$52.35

    I just saw your story on Yelo's instagram. Sending positive vibes your way little Macy xx

    Jono | A$104.27

    You guys are incredible! Much love to Macy, Tim and Sammy from Jono, Ainz and Elle.

    James Teakle | A$104.27

    No words. You three are incredible.

    Oli. | A$52.35

    Elizabeth Roberts | £100

    On behalf of Severn Court Residents Association Droitwich UK- thank you all!

    Kelly & Duke Rauh | $1,000

    for Luke & Jack

    Shelley | A$31.58

    For little Macy Fitzgerald xx

    Jace & Monique Quarrill | A$52.35

    For Macy xx

    Patricia | A$73.12

    Christine Twyford | £104.08

    For Harry, you light up my mornings with your winning smile little man. A very special part of my day.

    Anonymous | $5,192.42

    Tanja Fricke | A$243

    For a cure for all our WWOX warriors!

    Marius Maringer | A$13,225.47

    Fighting together with my wwox companions!

    Karen Pratt | $51

    Second donation on behalf of Luke and Jack’s abuelito Rodolfo

    Alex | £5.43

    Herisha Naidoo | R2,000

    For my darling Neyamiah,sending you lots of love 🌺God bless you my angel 😇

    Emma Veen | A$52.35

    For Sammy, Tim & little Macy xxx

    Rod Druce | A$104.27

    Hi Sammy & Macy I hope this helps, all our love, Rod & Lee-Anne

    Peter | A$208.11

    For Sammy and Macy from PC

    Webb & Brown-Neaves | A$21.19

    For beautiful Macy

    Guy Damiano | A$104.27

    for Sammy, Macy & Tim

    Michael Dos Santos | A$52.36

    For Macy, Sammy and Tim