Help Fund the Cure for WWOX






Children across the world are struggling. Each day they struggle to breathe, to see, to eat, to sleep, to walk and to talk. They suffer from onslaughts of countless seizures and fail to develop as a typical child.

The cause is hidden deep in their DNA in a gene called WWOX. Mutations of the WWOX gene is the cause of 2 devastating diseases, WOREE (WWOX-related Epileptic Encephalopathy) and SCAR12 (Spinocerebellar Ataxia-12). There are only 58 known cases of WOREE and SCAR12 worldwide. These diseases are stealing the futures of these children. The average lifespan of children with severe cases of WOREE syndrome is only 4 years of age.

But there is Hope. Researchers from around the world have banded together to find a cure. Recent laboratory testing has proven that mice with a WWOX mutation can be cured using a gene therapy treatment. However, funding for the research has been completely exhausted. Due to the extreme rarity of this disease funding is hard to come by and we need caring individuals such as yourself to help the cause.

-AUD $200,000 is required to complete the vital preclinical research and trial and a further,
-AUD $100,000 is required for the preclinical data to be reviewed and documented with the assistance of a third-party organisation to gain regulatory approval to proceed with a clinical trial.

Will you help provide hope for these children and their families by donating to the WWOX foundation?

There is no administrative overhead and each dollar donated goes directly to this life-saving research.

For more information about WWOX diseases and the WWOX Foundation please visit

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    WWOX FOUNDATION LIMITED (ABN: 90639202323) is registered with the Australian Charities and Not-for-profits Commission as a Health Promotion Charity. To ensure 100% of your donation goes towards research, you'll have the choice to cover the fees associated with your transaction before submitting. All donations over $2 are tax-deductible.

    Donor Wall303

    Catalina Barraza | $228.76

    Departe de los primitos de Matías

    Elizabeth Roberts | £50

    On behalf of Joan and John Robinson for Harry and George x

    Charlotte Lloyd | £201.91

    In memory of Frank Burgin (Sophie Lloyd's family)

    Karla Sanjines | A$75

    Donation from Licet and Maria Ines in honour of Lucia to help fund the cure for all the WWOX kids.

    Colegio La Encarnación de Villena | A$7,699.14

    Donación a todos los niños WWOX en honor a nuestra guerrera Zoe, por parte de la Asociación de padres de alumnos del colegio "La Encarnación de Villena".

    Carolina Huggare | $830.01

    Eddie goes to school/ Dudu vai a escola To celebrate 100 books sold, the total sales price is being donated. Love, Carolina

    Carolina Huggare | $830.01

    Eddie goes to school/ Dudu vai a escola To celebrate 100 books sold, the total sales price is being donated to WWOX foundation. Love Carolina

    Jaime Lledo | A$73.10

    Antonio Rodriguez | $26.27


    Recaudación Mima'm sudadera Zoe guerrera.

    Catalina Barraza | $1,267.19

    Money from the food sale fundraiser held this weekend and donations from friends & family.

    Abuelita zoe | 300 €

    De parte de Carmen Lydia, Reca y Eirin para Zoe


    Chalk Up | A$460

    For all the WWOX warriors!

    Marina Román | 120 €

    Todos con Zoe! Alicia (Maristas)

    Antonio | 21,03 €

    Mucho ánimo guerrera!!!

    EDUARDO | A$5.60

    Para Zoe de parte de Eduard

    Elizabeth Roberts | £5

    On behalf of Val Ingram for Harry and George

    Cristiane Aparecida Rodrigues da silva | R$137,81

    Pelo Matheus Rodrigues 🇧🇷

    Pedro Sáez Casanova | A$52.33

    Por Zoe!!💪🏾😘

    Papás Zoe | 100 €

    De parte de Eladio y Merche para Zoe. Gracias

    Papás Zoe | 20 €

    De parte de Pepe para Zoe. Gracias

    Papás Zoe Valiente | 20 €

    De parte de Esperanza para Zoe. Gracias

    roi | 200 €

    Para Zoe y todos los peques luchadores, con toda la esperanza e ilusión de este proyecto


    Courage à tous et surtout à Micol de tout cœur avec vous tous ❤️❤️❤️❤️❤️❤️

    Charlotte | £761.65

    From friends and family of Sophie Lloyd.

    Sarah | $300

    My mother Mary Grunewald passed away. My greandson, her great grandson, Oliver Bates has been diagnosed at 5 weeks with WWOX. She wanted memorial money to go to your foundation in hopes it will help find a cure for this awful genetic mutation.


    Papás Zoe | 100 €

    De parte de la tía Pilar para Zoe. Muchas gracias

    Cristiane Aparecida | R$1.974,70

    Dinheiro arrecado da Hamburgada do Matheus Rodrigues da Silva e para todas as nossas lindas crianças da Fundação WWOX. Mais uma doação cheia de fé e esperança que tudo vai dar certo e logo estaram todos curados através dessa Terapia Gênica. Com muito amor dos Papais, Família e Amigos do Matheus 💜