Novel Therapy for NF2

Please help us raise money to end NF2 through gene therapy.

NF2 is a disease that allows tumours to grow on nerves. They can form anywhere, but tend to favour the central nervous system of the brain and spine.  Nerve damage from tumour growth is debilitating for people with NF2 and causes degenerative weakness and total loss of many functions.  A person with NF2 can have a limitless number of tumours to deal with along with degenerative hearing, vision, physical and mental challenges.  Numerous operations, chemotherapies and other treatments compact the disease further.



Cure NF2 Foundation is confident that gene/cell/immuno therapy for the disease will be a cure and halt the progression. For the latest research progress update: https://curenf2.org/about-us/our-work/


Cure NF2 Foundation was created by mostly medical personnel and bioscience researchers who are themselves (or a family member) directly impacted by NF2. Therefore, the motivation, purpose, passion, and desire to succeed are paramount.

Other rare disease foundations have successfully funded and pushed for a gene replacement treatment of their rare diseases, and NF2 BioSolutions wants to follow that same model.


Thank you for your support. If you have any questions, contact gilles@curenf2.org


Our donors Most Recent

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Genevieve Girault

donated

$5,205.94

In support of our daughter and the brave community of those affected by NF2. I'm proud that Flying Pig Restoration can help support the important work the team at CureNF2.org is doing by making this donation.

Anonymous

Anonymous

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Ana Lopes Johnson

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Kimberly Smith

donated

$1,041.44

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Eva Brock

donated

$524

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Rena Polien

donated

$56.54

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Will Norwood

donated

$3,500

Nick was not only my brother he was my best friend. He lived an amazing life and I’m glad that we were able to come become so close. He had an amazing career in the defense industry working for Raytheon and I am blessed enough to follow in his footsteps. I am donating my signing bonus from Lockheed Martin to NF2 research in Nick‘s honor. Nick was the kindest, sweetest funniest person. He was always there to help a friend or family member. And most importantly, he loved his cat. No matter what he went through he always had a smile on his face and never complained about anything. You will always be in my heart Nick. I love you and miss you.

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kevin

donated

$52.37

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Sydnie Hoffman

donated

$104.40

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Tammy Ilaria

donated

$100

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Julie McAleavey

donated

$400

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Lisa

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Michael Drew

donated

$2,500

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Todd DeCarlo

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David

donated

$104.40

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David

donated

$104.40

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Jaclyn

Brittney, you are an amazing person, and you will be missed.

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Jeff Drew

donated

$2,603.13

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Monica

GG

Genevieve Girault

donated

$1,041.44

Flying Pig Restoration is happy to donate its proceeds from Millbrook Community Day 2025

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Julie McAleavey

donated

$104.43

On behalf of Flying Pig Restoration

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Dean

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Donna Norwood

donated

$260.60

Anonymous

Anonymous

donated

$260.60

We recently lost Nicholas of nf2. This is for his amazing life

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Beatrice

donated

$325

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Karin Krasevac-Lenz

donated

$130.46

LD

Lisa DeBusman

donated

$2,603.13

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Beth Bloomfield-Fox

donated

$130.46

AK

Amy Klann

donated

$130.46

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RoseAnn Grasso

donated

$1,041.44

The loss of our precious Becky has been truly horrific for our entire family. Please keep us all in your prayers.