Novel Therapy for NF2
Please help us raise money to end NF2 through gene therapy.
NF2 is a disease that allows tumours to grow on nerves. They can form anywhere, but tend to favour the central nervous system of the brain and spine. Nerve damage from tumour growth is debilitating for people with NF2 and causes degenerative weakness and total loss of many functions. A person with NF2 can have a limitless number of tumours to deal with along with degenerative hearing, vision, physical and mental challenges. Numerous operations, chemotherapies and other treatments compact the disease further.
NF2 BioSolutions is confident that gene/cell/immuno therapy for the disease will be a cure and halt the progression. Here are currently the 4 different novel approaches that we are accelerating:
For the latest research progress update: https://nf2biosolutions.org/gene-therapy-and-nf2/research-initiatives/research-update/
NF2 BioSolutions foundation was created by mostly medical personnels and bioscience researchers that are themselves (or a family member) directly impacted by NF2. Therefore the motivation, purpose, passion and desire to succeed are paramount.
Other rare disease foundations have successfully funded and pushed for a gene replacement treatment of their rare diseases, and NF2 BioSolutions wants to follow that same model.
Thank you for your support, if you have any questions contact gilles@nf2biosolutions.org
Donor Wall243
Leslie Delcid
For dear sweet Izzy
Genevieve Girault
This represents profits from my small enterprise Flying Pig Restoration for the year, even though I really don't make a profit. It still feels good!
Andrea Brock
Julie
Mary and Jim Brock | $520.87
Kennedy & Veronica | $519.94
Jeanne Hamilton | $50
Sarah Jane Wells | $115.88
In support of little Izzy, so her life may continue to be full of love and joy and the tumours stay small.
judith Bennis | $104.42
Catherine | $52.37
Supporting Izzy in the loss of her Mom
Joanne Taylor Brown | $35
Vipin Kumar Mittal | ₹10,966.39
I want to give my good wishes to all NF2 patients . I love you all. May you all recover from this terrible disease.
Marisa Lehrer | $36.87
Lisa Park
Pamela S. Hughes
In memory of Carolyn Boos Jones - a wonderful wife and mother and so much more. With much love, from the Hughes family
Norma
Stephen Vaughan needs a cure to live his best life in the present and future 🙏 Please help our Stephen and many others.🙏
Ellie Marshall | £5
Anonymous
John Schad | $104.42
Connie Degneau
Genevieve
Flying Pig Restoration is honored to donate to this amazing effort to find a cure for NF2!
Lori
FertilityIQ
Wayne Trentacosta | $130.37
Andy Henwood
Yelena | $208.54
Barbara
God Bless your son, niece and all who have this dease.
Paul Romano
Susan Sutherland | $259.92
Kelly Muhney | $104.15