Novel Therapy for NF2
Please help us raise money to end NF2 through gene therapy.
NF2 is a disease that allows tumours to grow on nerves. They can form anywhere, but tend to favour the central nervous system of the brain and spine. Nerve damage from tumour growth is debilitating for people with NF2 and causes degenerative weakness and total loss of many functions. A person with NF2 can have a limitless number of tumours to deal with along with degenerative hearing, vision, physical and mental challenges. Numerous operations, chemotherapies and other treatments compact the disease further.

NF2 BioSolutions is confident that gene/cell/immuno therapy for the disease will be a cure and halt the progression. Here are currently the 4 different novel approaches that we are accelerating:

For the latest research progress update: https://nf2biosolutions.org/gene-therapy-and-nf2/research-initiatives/research-update/
NF2 BioSolutions foundation was created by mostly medical personnels and bioscience researchers that are themselves (or a family member) directly impacted by NF2. Therefore the motivation, purpose, passion and desire to succeed are paramount.
Other rare disease foundations have successfully funded and pushed for a gene replacement treatment of their rare diseases, and NF2 BioSolutions wants to follow that same model.
Thank you for your support, if you have any questions contact gilles@nf2biosolutions.org
Our donors
JM
Julie McAleavey
donated
$400
L
Lisa
MD
Michael Drew
donated
$2,500
TD
Todd DeCarlo
D
David
donated
$104.40
D
David
donated
$104.40
J
Jaclyn
Brittney, you are an amazing person, and you will be missed.
JD
Jeff Drew
donated
$2,603.13
M
Monica
GG
Genevieve Girault
donated
$1,041.44
Flying Pig Restoration is happy to donate its proceeds from Millbrook Community Day 2025
JM
Julie McAleavey
donated
$104.43
On behalf of Flying Pig Restoration
D
Dean
DN
Donna Norwood
donated
$260.60
R
Anonymous
donated
$260.60
We recently lost Nicholas of nf2. This is for his amazing life
B
Beatrice
donated
$325
KK
Karin Krasevac-Lenz
donated
$130.46
LD
Lisa DeBusman
donated
$2,603.13
BB
Beth Bloomfield-Fox
donated
$130.46
AK
Amy Klann
donated
$130.46
RG
RoseAnn Grasso
donated
$1,041.44
The loss of our precious Becky has been truly horrific for our entire family. Please keep us all in your prayers.
GG
Flying Pig Restoration
donated
$1,000
We’re happy to make a donation in honor of our daughter Sophia who perseveres despite her NF2. NF2 Biosolutions is doing such important work and we’re so grateful!
JA
John Aquino
donated
$104.43
G
Gary
Donation via 'Hope in Action'
J
Jerry & Shirley
MW
Matthew Waldor
donated
$75
Inspired by the HOPE in Action Club
RA
SIHF Childcare Physicians
DB
Debra Bollinger
donated
$52.59
M
Monica
DC
Sentinel Bridge Wealth Management
donated
$100
Donation made on behalf of Laurel and the Velez Family. - The Team at Sentinel Bridge
ST
Susan Thiedt
donated
$104.39
I donate with support and love for my granddaughter, Laurel Velez. I pray a cure can be found for her and all those with NF2!