Novel Therapy for NF2

Please help us raise money to end NF2 through gene therapy.

NF2 is a disease that allows tumours to grow on nerves. They can form anywhere, but tend to favour the central nervous system of the brain and spine.  Nerve damage from tumour growth is debilitating for people with NF2 and causes degenerative weakness and total loss of many functions.  A person with NF2 can have a limitless number of tumours to deal with along with degenerative hearing, vision, physical and mental challenges.  Numerous operations, chemotherapies and other treatments compact the disease further.



NF2 BioSolutions is confident that gene/cell/immuno therapy for the disease will be a cure and halt the progression. Here are currently the 4 different novel approaches that we are accelerating:


For the latest research progress update: https://nf2biosolutions.org/gene-therapy-and-nf2/research-initiatives/research-update/


NF2 BioSolutions foundation was created by mostly medical personnels and bioscience researchers that are themselves (or a family member) directly impacted by NF2.  Therefore the motivation, purpose, passion and desire to succeed are paramount.

Other rare disease foundations have successfully funded and pushed for a gene replacement treatment of their rare diseases, and NF2 BioSolutions wants to follow that same model.


Thank you for your support, if you have any questions contact gilles@nf2biosolutions.org


We are a 501(c)3 charitable organization. All donations are tax deductible. Or tax ID # is 83-0940046

Our donors

JM

Julie McAleavey

donated

$400

L

Lisa

MD

Michael Drew

donated

$2,500

TD

Todd DeCarlo

D

David

donated

$104.40

D

David

donated

$104.40

J

Jaclyn

Brittney, you are an amazing person, and you will be missed.

JD

Jeff Drew

donated

$2,603.13

M

Monica

GG

Genevieve Girault

donated

$1,041.44

Flying Pig Restoration is happy to donate its proceeds from Millbrook Community Day 2025

JM

Julie McAleavey

donated

$104.43

On behalf of Flying Pig Restoration

D

Dean

DN

Donna Norwood

donated

$260.60

R

Anonymous

donated

$260.60

We recently lost Nicholas of nf2. This is for his amazing life

B

Beatrice

donated

$325

KK

Karin Krasevac-Lenz

donated

$130.46

LD

Lisa DeBusman

donated

$2,603.13

BB

Beth Bloomfield-Fox

donated

$130.46

AK

Amy Klann

donated

$130.46

RG

RoseAnn Grasso

donated

$1,041.44

The loss of our precious Becky has been truly horrific for our entire family. Please keep us all in your prayers.

GG

Flying Pig Restoration

donated

$1,000

We’re happy to make a donation in honor of our daughter Sophia who perseveres despite her NF2. NF2 Biosolutions is doing such important work and we’re so grateful!

JA

John Aquino

donated

$104.43

G

Gary

Donation via 'Hope in Action'

J

Jerry & Shirley

MW

Matthew Waldor

donated

$75

Inspired by the HOPE in Action Club

RA

SIHF Childcare Physicians

DB

Debra Bollinger

donated

$52.59

M

Monica

DC

Sentinel Bridge Wealth Management

donated

$100

Donation made on behalf of Laurel and the Velez Family. - The Team at Sentinel Bridge

ST

Susan Thiedt

donated

$104.39

I donate with support and love for my granddaughter, Laurel Velez. I pray a cure can be found for her and all those with NF2!