Novel Therapy for NF2
Please help us raise money to end NF2 through gene therapy.
NF2 is a disease that allows tumours to grow on nerves. They can form anywhere, but tend to favour the central nervous system of the brain and spine. Nerve damage from tumour growth is debilitating for people with NF2 and causes degenerative weakness and total loss of many functions. A person with NF2 can have a limitless number of tumours to deal with along with degenerative hearing, vision, physical and mental challenges. Numerous operations, chemotherapies and other treatments compact the disease further.
NF2 BioSolutions is confident that gene/cell/immuno therapy for the disease will be a cure and halt the progression. Here are currently the 4 different novel approaches that we are accelerating:
For the latest research progress update: https://nf2biosolutions.org/gene-therapy-and-nf2/research-initiatives/research-update/
NF2 BioSolutions foundation was created by mostly medical personnels and bioscience researchers that are themselves (or a family member) directly impacted by NF2. Therefore the motivation, purpose, passion and desire to succeed are paramount.
Other rare disease foundations have successfully funded and pushed for a gene replacement treatment of their rare diseases, and NF2 BioSolutions wants to follow that same model.
Thank you for your support, if you have any questions contact [email protected]
Donor Wall220
Wayne Trentacosta | $130.37
Andy Henwood
Yelena | $208.54
Barbara
God Bless your son, niece and all who have this dease.
Paul Romano
Susan Sutherland | $259.92
Kelly Muhney | $104.15
Robyn | $52.23
Mike & Jennifer Stauth | $130.11
Terri Rausch | $104.15
Janet
Michael Raj | $1,038.73
Hope this will be used for the most promising cure going for human trials
Thomas Morrell | $1,020.30
My wife, Sharon, passed away on 11/16/2022 at age 60 after a life long battle with NF2. Sharon lived life to its fullest regardless of the limitations brought on by NF2. Was a great mother, wife and NF2 advocate. May she RIP with perfect hearing, vision and mobility.
Jordan | $36.66
Zhao | $50
James nguyen | $52.32
Harry Shapiro | $100
Gail Rodin | $75
Karshawn Espy | $103.83
Cara
Xiang
Yuna | $129.71
Thank you for your effort and wish the earlier news about the progress in NF2 research
Michael Raj
Michael LaMarche | $26.19
For the Rebecca Grasso Annual NF2Biosolutions Golf Tournament
George Sotier | $331
Yuna Hu | $129.71
For Adoptive Cell Therapy at University of Manchester UK
Larry & Vickie Buckley | $129.71
Sharon McKenney | $36.54
Florence & Trey Stadler | $103.83
Gloria Popp | $52.07