Novel Therapy for NF2

Please help us raise money to end NF2 through gene therapy.

NF2 is a disease that allows tumours to grow on nerves. They can form anywhere, but tend to favour the central nervous system of the brain and spine.  Nerve damage from tumour growth is debilitating for people with NF2 and causes degenerative weakness and total loss of many functions.  A person with NF2 can have a limitless number of tumours to deal with along with degenerative hearing, vision, physical and mental challenges.  Numerous operations, chemotherapies and other treatments compact the disease further.



NF2 BioSolutions is confident that gene/cell/immuno therapy for the disease will be a cure and halt the progression. Here are currently the 4 different novel approaches that we are accelerating:


For the latest research progress update: https://nf2biosolutions.org/gene-therapy-and-nf2/research-initiatives/research-update/


NF2 BioSolutions foundation was created by mostly medical personnels and bioscience researchers that are themselves (or a family member) directly impacted by NF2.  Therefore the motivation, purpose, passion and desire to succeed are paramount.

Other rare disease foundations have successfully funded and pushed for a gene replacement treatment of their rare diseases, and NF2 BioSolutions wants to follow that same model.


Thank you for your support, if you have any questions contact gilles@nf2biosolutions.org

We are a 501(c)3 charitable organization. All donations are tax deductible. Or tax ID # is 83-0940046

Donor Wall 248

Barbara

God Bless your son, niece and all who have this dease.

Paul Romano

Susan Sutherland | $259.92

Kelly Muhney | $104.15

Robyn | $52.23

Mike & Jennifer Stauth | $130.11

Terri Rausch | $104.15

Janet

Michael Raj | $1,038.73

Hope this will be used for the most promising cure going for human trials

Thomas Morrell | $1,020.30

My wife, Sharon, passed away on 11/16/2022 at age 60 after a life long battle with NF2. Sharon lived life to its fullest regardless of the limitations brought on by NF2. Was a great mother, wife and NF2 advocate. May she RIP with perfect hearing, vision and mobility.

Jordan | $36.66

Zhao | $50

James nguyen | $52.32

Harry Shapiro | $100

Gail Rodin | $75

Karshawn Espy | $103.83

Cara

Xiang

Yuna | $129.71

Thank you for your effort and wish the earlier news about the progress in NF2 research

Michael Raj

Michael LaMarche | $26.19

For the Rebecca Grasso Annual NF2Biosolutions Golf Tournament

George Sotier | $331

Yuna Hu | $129.71

For Adoptive Cell Therapy at University of Manchester UK

Larry & Vickie Buckley | $129.71

Sharon McKenney | $36.54

Florence & Trey Stadler | $103.83

Gloria Popp | $52.07

Patricia Lago-Avery | $103.83

Maria

In honor of Melissa Skyer, the fearless and brave woman who I had the honor of calling my friend.

Brian Ross