Financial Support for the Johnston Family

$131,484.85

Raised

Donations

$160,000

Goal


9/7/2023 Update:


The family of Scott is very grateful of the support you provided them throughout Scott's fight with ALS. Your generosity helped to sustain them as they faced the financial burdens that go along with caregiving and other medical needs. Moving forward, we are halting the monthly recurring donations. Please know how much your support meant to the family!





Scott Johnston, and his family, got life changing news last year. Scott, at 35 years old, was diagnosed with ALS (Lou Gehrig’s disease). ALS is a disease of the parts of the nervous system that affects voluntary muscle movement and has no cure. The diagnosis came as a complete shock and the progression of the disease has moved quickly and Scott’s needs are ever changing as time goes on. Currently, Scott has lost all ability to move his arms and legs. He drives his wheelchair with a head array and is transferred from his bed and chair with a Hoyer lift. He has a tracheotomy tube and is on a ventilator 24 hours a day. And as of recently, swallowing is starting to become a challenge for him. 


Ashley, Scott’s wife, takes care of Scott full time now. The family hires private duty help for a few hours in the morning and an hour or two at night to allow for Ashley to get their daughter to and from school and run errands if needed. As you can imagine, the financial demand on the family is substantial. Despite the stress they face, they are unwavering in their devotion to their two children, Macy age 4 and Jett age 2. Their dedication, love & patience is remarkable considering the circumstances they face each day. 


As family & friends, we are initiating a fund for the family that can go towards their everyday necessities as well as Scott’s needs- treatment, medical equipment, private duty costs, and any other need that arises for them. The fund allows for a recurring monthly donation which would be beneficial as it would allow them to plan for their expenses each month, and it also has an option for a one time donation. With Scott not working and Ashley unable to pick up many hours at the hospital due to caring for Scott and the kids, this fund will allow them to live, allow Ashley to be Scott's nurse while also caring for the kids, allow for a few private duty hours each day so Ashley can step away and take Macy to school, go to appointments, run errands, etc., and potentially allow them to afford a night nurse, as they are up multiple times in the night due to Scott's care. The cost of a night nurse in itself is approximately $2,000 per week.


The Johnston family is focusing their energy on fighting this every step of the way. Our goal is to allow their minds and hearts to be focused on this fight, and raising their beautiful children, and nothing else. We ask that you keep the Johnston’s in your prayers and consider donating to this truly amazing family.


Our donors

MM

Michael Moberg

donated

$311.84

Thoughts and prayers are with you and your family. I know your dad from high school many years ago (1980s) and CJ was always a beacon of positivity and goodwill, funny, and a well-grounded all around great person and coach! One of the best people I have ever met. I expect the apple doesn’t fall far from the tree!

LC

Lois Carpenter

donated

$25

Our brother-in-law dealt with ALS for several years so are well aware of this terrible disease. Prayers for the entire family!

JG

Janell Garis

donated

$100

In memory of Hank and Loretta Schuring

JS

Janet and John Schuring

donated

$519.52

In Loving Memory of Aunt Lorrie and Uncle Henry

KM

Kiley Maxwell-Ward

In memory of Hank & Loretta Schuring

C

Carol

donated

$52.23

In honor of dear Loretta and Hank! Such a wonderful family!!

MM

Mary K Miles

donated

$52.23

In honor of Hank & Loretta Schuring

JT

Jayne Tinley Wochomurka

donated

$250

DF

Dava Finch

donated

$104.15

My deepest sympathies and in honor of your parents Kathy. My continued prayers for Scott, his wife, kids, Chuck and Kathy during this extremely difficult time.

SS

Susie and Stewart Smoler

In honor of your dear grandparents, Hank and Loretta. We send love to you all .

CA

Charlotte Austin

In memory of Hank and Loretta Schuring

NC

Nancy Cataneo

donated

$150

In loving memory of Hank and Loretta. Love, Nancy, Dan and Roslyn

AK

Amanda Koris

In loving memory of Hank and Lorretta Schuring. Continued prayers for your family...Amanda Koris

KP

Ken & Mary Peterson

donated

$104.15

In memory of Hank & Loretta Schuring

MH

Melissa Hinrichs

donated

$104.15

Sending prayers and support to your beautiful family in honor of Hank and Loretta Schuring

PB

Patti Brannon

donated

$52.23

In memory of my sister, Teri

PJ

Pamela J Johnston

donated

$104.15

In Honor of Hank and Loretta Schuring

TB

Trish Billotte

This donation is in honor of Hank and Loretta Schuring. What a wonderful way to honor their lives. Trish and Mark

PK

Paul & Joan Kunes

donated

$104.15

NB

Nancy Brant

In loving memory of Loretta and Hank Schuring, whose love for their grandchildren and great-grandchildren was a tremendous force in their lives. They will be missed. The Brant Family

MG

Melissa Graves

donated

$1,038.73

My mom is friends with Scott’s mom. We are praying for you all.

DB

Daniel Berve

donated

$104.15

Scotty J is simply one of the best. Sending prayers to the Johnston family during these challenging times.

JM

John McPhail

donated

$104.15

KR

Kevin Ross

donated

$104.15

Sending prayers to the family and caregivers. Keep fighting Kevin and Sandy Ross

CS

Charles Sinclair

May God bless all of the Johnston family.

CP

Chris Peterson

donated

$100

CJ

Corey Joekel

KS

Kevin Schneider

donated

$104.15

JB

Jenni Bendfeldt

donated

$104.15

B

Bill and Kathy

donated

$1,038.73

We are keeping you and your family in our prayers.