Financial Support for the Johnston Family

$131,484.85

Raised

Donations

$160,000

Goal


9/7/2023 Update:


The family of Scott is very grateful of the support you provided them throughout Scott's fight with ALS. Your generosity helped to sustain them as they faced the financial burdens that go along with caregiving and other medical needs. Moving forward, we are halting the monthly recurring donations. Please know how much your support meant to the family!





Scott Johnston, and his family, got life changing news last year. Scott, at 35 years old, was diagnosed with ALS (Lou Gehrig’s disease). ALS is a disease of the parts of the nervous system that affects voluntary muscle movement and has no cure. The diagnosis came as a complete shock and the progression of the disease has moved quickly and Scott’s needs are ever changing as time goes on. Currently, Scott has lost all ability to move his arms and legs. He drives his wheelchair with a head array and is transferred from his bed and chair with a Hoyer lift. He has a tracheotomy tube and is on a ventilator 24 hours a day. And as of recently, swallowing is starting to become a challenge for him. 


Ashley, Scott’s wife, takes care of Scott full time now. The family hires private duty help for a few hours in the morning and an hour or two at night to allow for Ashley to get their daughter to and from school and run errands if needed. As you can imagine, the financial demand on the family is substantial. Despite the stress they face, they are unwavering in their devotion to their two children, Macy age 4 and Jett age 2. Their dedication, love & patience is remarkable considering the circumstances they face each day. 


As family & friends, we are initiating a fund for the family that can go towards their everyday necessities as well as Scott’s needs- treatment, medical equipment, private duty costs, and any other need that arises for them. The fund allows for a recurring monthly donation which would be beneficial as it would allow them to plan for their expenses each month, and it also has an option for a one time donation. With Scott not working and Ashley unable to pick up many hours at the hospital due to caring for Scott and the kids, this fund will allow them to live, allow Ashley to be Scott's nurse while also caring for the kids, allow for a few private duty hours each day so Ashley can step away and take Macy to school, go to appointments, run errands, etc., and potentially allow them to afford a night nurse, as they are up multiple times in the night due to Scott's care. The cost of a night nurse in itself is approximately $2,000 per week.


The Johnston family is focusing their energy on fighting this every step of the way. Our goal is to allow their minds and hearts to be focused on this fight, and raising their beautiful children, and nothing else. We ask that you keep the Johnston’s in your prayers and consider donating to this truly amazing family.


Donor Wall 168

Firew | $100

I pray for you in the name of Jesus Christ

Jake Hirz | $50

Keep fighting, we are praying for you!

Alaina Martens | $519.52

Rob and Robin Schwab | $100

Janet and John Schuring | $1,038.73

Sending our love and prayers for this wonderful family.

Deb Kirchner | $104.15

Praying for you all each and every day….

Brad/Lori Koehn | $311.84

Praying for your sweet family every day. Donating in memory of my sweet momma, Evelyn Meirose, who battled ALS.

Kyle Madson | $50/M

Kari Jo Onken | $104.15

Russ and Robbie | $104.15

Praying for your sweet little family!

Karissa Johnson | $25/M

The Johnston family has touched the Johnson family since our Monarch days. My prayer is that you’ll continue to grow in love, you’ll trust the Lord, and you’ll savor the sweet. Prayers for healing and comfort for Scott. Love you guys!

Brooke Dillon | $19.83/M

We left Nebraska in 1983, but I've always had a soft spot in my heart for Chuck, who started teaching at PLVHS a couple years after I started as an English teacher. Our paths have crossed a few times since we left, and it's always reminded me of what a wonderful person he is. We want to make this monthly contribution to help all of the Johnstons in this tough journey. We are keeping you in our prayers.

Ron & Laurie McKenzie | $52.23/M

Marcus Madler | $50/M

Samantha Deck | $52.23

Brandon Rotherham | $21.08

Merry Christmas! God bless you and your family.

Stacey Waters | $156.07

Emily | $519.52

In memory of my grandpa who had ALS in 1982.

Tammy Buffum | $52.23

Nadine | $519.52

In memory of my mom, Audrey; I know she would want to contribute to this beautiful family.

Micky Marti | $104.15

Mark and Pam Caniglia | $50

Jon & Jennifer Post | $208

Jon & Denise Mills | $104.15

Beth and Mike Bartels | $104.15

Prayers for strength and God’s Grace

JUDY | $104.15

In honor of the Priests of St. Michael’s Parish

Clar & Laurie | $100

Katie Lieffers | $26.27

Bill & Lynda Santoro | $208

Justin & Dory Moore