Olivia's Light serves children living with a rare disease, before and after the diagnosis.
Olivia's Light currently funds broad genetic testing to UVA Health Children's pediatric patients that are suspected of having a disease-causing genetic condition and are in financial need.
Additionally, we have pledged to raise $100,000 towards an endowment that we'll gift to UVA Health Children's palliative care department. These funds will finance medical equipment, services and other needs deemed necessary by the child's healthcare provider.
Furthermore, we are partnering with other healthcare institutions to support children who share Olivia's condition, EEF1A2 related neurodevelopmental disorder.
We are actively working on additional programs to support children throughout their entire journey.
Thank you for helping us drive our mission forward!