Every step forward in the '20 for 20' Campaign brings us closer to breakthroughs for v-ATPase-related disorders.
Our goal is to collect 20 vital patient biosamples, each representing a crucial piece of the puzzle on our #RoadToACure. As each $1,000 is raised, representing one funded biosample.
Your Action Fuels Our Progress!
Every donation, big or small, gets us one step closer to filling this grid and completing our initial biosample collection. Your support directly contributes to unlocking the biological insights needed for understanding disease mechanisms, identifying therapeutic targets, and ultimately, developing treatments.
Help us fund this initiative and move us closer to a cure!
Click in the DONATE button today and be a part of this pivotal campaign!
Our Mission: $20,000 for 20 Life-Changing Biosamples
Imagine finding answers, unlocking treatments, and finally seeing hope turn into action for children facing a devastating rare genetic disorder. This is our urgent mission at the v-ATPase Alliance, and today, we're launching our '20 for 20' Campaign to make it a reality.
We are aiming to raise $20,000 to collect 20 vital biosamples from children affected by v-ATPase-related conditions worldwide. Each sample, costing approximately $1,000 to collect, process, and store, represents a crucial piece of the puzzle in our quest for a cure.
Why These 20 Biosamples are so important to a Cure?
v-ATPase-related disorders are ultra-rare genetic conditions that impact a fundamental "pump" in nearly every cell of the body. These conditions often lead to severe challenges, including Developmental and Epileptic Encephalopathies (DEEs).
While we gather essential patient data, biosamples are the direct biological material researchers desperately need. They are our "physical keys" to understanding how and why these conditions manifest at a molecular level. Each sample allows scientists to:
Identify Biomarkers: Discover unique biological clues for earlier diagnosis, tracking disease progression, and measuring treatment effectiveness.
Develop Patient-Specific Disease Models: Create vital "living laboratories" (like iPSC cell lines) that mimic the disease, enabling safe testing of potential drug candidates.
Accelerate Treatment Development: Provide world-leading scientists with the irreplaceable resources needed to fast-track targeted therapies.
Without these 20 precious biosamples, critical breakthroughs remain out of reach.
Your $1,000 Donation Funds a Full Sample. Any Amount Fuels Our Progress!
$1,000 fully funds one biosample, unlocking a wealth of insights.
$500 covers half the cost, bringing us significantly closer.
Every single dollar directly contributes to the collection, processing, and secure storage of these irreplaceable samples.
The samples collected will be securely stored and meticulously cataloged within the COMBINEDBrain Biorepository. This ensures they are preserved under optimal conditions and made globally accessible to qualified researchers, fostering worldwide collaboration.
Join the '20 for 20' Movement: Be a Catalyst for a Cure!
Your generosity isn't just a donation; it's a direct investment in the lives of children affected by v-ATPase disorders. It's a commitment to hope, a belief in science, and a tangible step towards a future where treatments and cures are a reality.
Please donate today. Share this campaign with your friends, family, and network. Together, we will be transforming scientific potential into life-changing realities.
Click the 'Donate' button and help us reach our '20 for 20' goal!
About the v-ATPase Alliance
The v-ATPase Alliance is a patient-led, non-profit organization dedicated to accelerating research, fostering global collaboration, and improving care for individuals and families affected by ultra-rare genetic disorders caused by v-ATPase dysfunction. We are driven by the fierce love of parents and the unwavering commitment to find answers. We are a 501(c)(3) with EIN: 93-4759423.
