The Mission Expands: 20 for 20 & Beyond! 🚀
In 2025 we’ve reached a major milestone! Thanks to our incredible community, we have successfully funded our first 20 life-changing biosamples. This success has proven one thing: our #RoadmapToACure is wide open, and the scientific demand for these samples is growing.
Every new sample we fund is a "physical key" that unlocks deeper biological insights. Because of our progress, we are not stopping at 20. We are expanding the '20 for 20' Campaign to ensure that every genetic variant in our community is represented in the lab.
Your Action Fuels Global Progress
Your support directly contributes to creating the "living laboratories" (iPSC cell lines) that researchers desperately need to test potential treatments. By funding more samples, we are:
Identifying Biomarkers: Biological clues to track disease and measure treatment success.
Building Disease Models: Allowing scientists to test drugs safely on patient-specific cells.
Accelerating 2026 Trials: Providing world-leading researchers with the raw materials to fast-track targeted therapies.
Looking Ahead: 2026 Collection Calendar 🗓️
We are taking the mission on the road!
To make sample collection accessible we want to share our 2026 tentative dates - this year space is limited and it is first come, first-served! Want to Participate: let us know immediately.
Why Your Continued Support Matters
v-ATPase-related disorders impact a fundamental "pump" in nearly every cell, often leading to severe Developmental and Epileptic Encephalopathies (DEEs). Without a steady supply of diverse biosamples, critical breakthroughs remain just out of reach.
How You Can Help Reach the Next 20:
$1,000: Fully funds the collection, processing, and secure storage of one new biosample.
$500: Covers half the cost, bringing a child’s data significantly closer to the lab.
Any Amount: Fuels the secure storage and global accessibility of these samples via our Biorepository.
Join the Movement: Be a Catalyst for a Cure!
Your generosity isn’t just a donation; it’s a direct investment in the lives of children. It’s a commitment to turning scientific potential into a tangible reality.
Please donate today. Share our progress with your network. Together, we are building the future, one sample at a time.
Join the '20 for 20' Movement: Be a Catalyst for a Cure!
About the v-ATPase Alliance
The v-ATPase Alliance is a patient-led, non-profit organization dedicated to accelerating research, fostering global collaboration, and improving care for individuals and families affected by ultra-rare genetic disorders caused by v-ATPase dysfunction. We are driven by the fierce love of parents and the unwavering commitment to find answers. We are a 501(c)(3) with EIN: 93-4759423.
