The Pulsatile Tinnitus Foundation, Inc.

The Pulsatile Tinnitus Foundation (PTF) collects, manages and shares information about pulsatile tinnitus, a rare symptom described as a rhythmic sound that is in sync with the heartbeat or pulse. 

While the underlying causes of pulsatile tinnitus cross over a number of various medical specialties, the majority of them are identifiable and treatable. Indeed, some causes are lethal if not addressed quickly, and pulsatile tinnitus may be the sole underlying symptom. However, pulsatile tinnitus is often incorrectly referred to and often diagnosed as “tinnitus,” for which an entirely different medical workup is warranted. 

PTF provides support, via social networking platforms, collections of medical reports, and databases of medical professionals familiar with pulsatile tinnitus cases, to educate patients and the medical community. We connect patients to doctors, and doctors to their colleagues, each a crucial component of treatment, since pulsatile tinnitus merits a multi-disciplinary approach. We support the medical community devoted to pulsatile tinnitus studies. We advocate for increased awareness, in monthly awareness campaigns and others. We facilitate patient support meetings across the United States and worldwide. We monitor trends in algorithmic recommendations for diagnostic imaging. We encourage and enable patients to be their best advocates, equipping them with information to share with their doctors, who may have never seen a patient with this symptom in their practice. We use technology to support patients’ experiences with a rare symptom – sharing how it impacts daily life – and to educate medical professionals with limited training to identify pulsatile tinnitus causes and the complex workup warranted by the symptom. 

The website is operated and managed by The Pulsatile Tinnitus Foundation, Inc., as our focal online forum and network that currently links thousands of individuals in over 60 countries. 

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The Pulsatile Tinnitus Foundation, Inc. is a 501(c)(3) charitable organization. Contributions are tax-deductible for income, gift, and estate taxes. Our EIN is 83-2497866.

Donor Wall4

Anonymous | $100

I am overwhelmed with beginning to address my PT, though your website and the Webinar have been very helpful. Question: Are you going to update the Top Ten Pulsatile Tinnitus Tips For Doctors? Thank you for all you do!

Lauren | $200

Hello, I am Lauren from Sydney Australia. Thank you for your wonderful website, the information on hand and the doctor webinars. It is an amazing website. I had severe Pulsatile Tinnitus in my left ear associated with dizziness/lightheadness but no more now! I had a minnimally invasive operation yesterday with a Vascular Neurosurgeon for a Venous Stenosis Sinus Stent for Pulsatile Tinnitus. I have had the issue for 1year and a half. I went through the whole ENT road, was going crazy, the pounding in my ear was driving me nuts and after listening to your website and the Drs, I went down the Vascular journey and straight away the Surgeon saw the narrowing of my veins was causing the issue. If anyone from Australia needs a Vascular Neuosurgeon for this issue contact: Dr Rodney Allan at Royal Prince Albert Hospital in Sydney Australia who can do these types of operations. The pounding in my ear went away instantly after the operation, I cannot believe it! Im on blood thinners for 3months and then asprin. Thank you and the Doctors on the Webinars who explained the proceedures! This site pushed me to find answers! Lauren Sydney, Australia

Rachel | $52.23

Thank you for all you do for PT patients!

Jennifer Kaufmann | $30