OBLITERATE Osteosarcoma with Team Ian

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$22,896.29

Raised

118

Donations

$100,000

Goal


Ian has been battling osteosarcoma (bone cancer) since April of 2015.  It started with a bump on his shin that when removed was discovered to be malignant. After amputating his leg in June of 2015 and 8 grueling months of chemotherapy he was declared NED (no evidence of disease). But sadly 6 months later doctors found a new tumor at the base of his spine in his sacrum.  Experimental therapies at Cleveland Clinic used radium to blast the tumor from the inside out giving him another amazing year and a half before passing away due to complications from treatment-induced AML leukemia.  Throughout this journey, Ian has truly lived his life fully — “If I can stand, I can climb."





Osteosarcoma is a rare and aggressive cancer that is notoriously difficult to treat. Due to the rarity and inherent differences from other cancers research is sparse. There hasn't been any change in first line treatment for osteosarcoma in over 30 years.  A group of parents and survivors of osteosarcoma decided to work to change the lack of research and treatment options for osteosarcoma. This group of dedicated patient advocates formed MIB (Make It Better) Agents and hosted the first ever osteosarcoma conference in February 2017. The name is the Osteosarcoma Alliance FACTOR conference, FACTOR stands for fundraising, awareness, collaboration, trials and osteosarcoma research.  Over 50 doctors and scientists attending with at least the same number of patients and caregivers. The goal is to begin meaningful collaboration between scientists and patient advocates while raising funds and awareness for new trials and treatment options.  In addition to solely focused on Osteosarcoma, what makes the MIB (Make It Better) Agents unique is that research funds are awarded in a VC-style process where only the best ideas get funded and approved by our scientific board.


When asked where he would like TEAM IAN fundraising efforts to be focused. Ian wanted fundraising to go toward further research so that we can OBLITERATE osteosarcoma.

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MIB Agents Note:  MIB Agents is so grateful for the time and talent of Ian's mother on the FACTOR Research Conference Team.  She has contributed greatly to the planning and development of this conference.  Many times, working from Ian's hospital room.  In addition, she is the Floor Chief at the Conference, and is in charge of developing and executing the MIB Family Agents initiative. We are in awe of Liz and the entire Vallejo Family.  

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If you would prefer to mail a check to Ian's Osteosarcoma Research Fund:

MIB Agents HQ

PO Box 858

Barnard, VT  05031

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FED TAX ID:  81-1109906 

A 501(c)3 Nationwide Nonprofit Organization

MIB Agents is a 501(c)3 Non-profit national organization that Makes It Better for kids with osteosarcoma.  Thank you for using your powers for good, as Ian did, to Make It Better for kids with osteosarcoma.