TEAM RARE 26.2

This fall, I'm proud to be participating in Team RARE 26.2 and fundraising in honor of my daughter, Katie, who is living with LCHAD deficiency, a rare fatty acid oxidation disorder.

As a rare disease mom, I have seen firsthand the challenges that come with navigating a rare diagnosis and advocating for access to care and treatment. I've also witnessed incredible resilience, determination, and hope. Katie inspires me every day, and this challenge is an opportunity to honor her journey while supporting the broader rare disease community.

From October 12 through November 13, I'll be completing 26.2 miles, each one representing families like ours who face rare diseases every day and continue moving forward with courage and determination.

Every dollar raised helps advance the mission of the RARE Foundation. Their work supports policies, research, access, and evidence generation that can improve the lives of people living with rare diseases and help create a future with more treatment options and better outcomes.

Thank you for supporting me, Katie, and the entire rare disease community. Together, we can raise awareness, drive progress, and help ensure that no rare disease family faces their journey alone.