TEAM RARE 26.2

From October 12 through November 13, my family and I will complete 26.2 miles through runs, walks, and hikes. This challenge is in honor of my dad who has a rare disease where he can no longer independently walk or stand. This progressive neurological rare disease has significantly changed his quality of life and unfortunately there’s no cure. As a family we decided that challenging ourselves in a physical manner is honoring my dad while taking care of our own health. 

26.2 miles can look different for everyone - for some like my dad they are impossible, so these miles are to honor and raise awareness to our about rare diseases and how life changing they can be. Our hope is to fundraise and help support research and improve early detection protocols. It took 12 years for my dad to be diagnosed and we hope that every dollar fundraised can help future patients get diagnosed sooner, help advance polices, improve accessibility, and meaningful for people living with rare diseases.

Feel free to go on a virtual run or walk with us in honor of my dad and donate if you wish to a meaningful cause. 

Post and tag one of us if this inspired you to grab your tennis shoes and hit the pavement for a run/walk!