TEAM RARE 26.2

This walk is not just for me. It’s for my brother, Evan, and all others who have rare diseases or are undiagnosed.  I am RARE! I have been diagnosed with POTS and Ehlers-Danlos Syndrome. But, that doesn’t stop me! I dance, exercise, and do the things I love. I hope nothing stops you too! Join this walk with me! 

From October 12 through November 13, I will walk, dance, and hoverboard 26.2 miles with the RARE Foundation. 

26.2 miles can look different for everyone. There is no required pace and no single way to complete the distance. What matters is coming together and moving with purpose. However you participate, every mile helps raise awareness for the rare disease community. 

I am a part of Team RARE and a community moving together toward what’s possible.

Please consider supporting me and the rare disease community. Thank you very much! 

26.2 miles. My  pace. My way. One community moving together.