Help us continue to Light the Way, moving science forward for our STAR patients

In February 2018, a small group of parents, scientists and supporters came together around a dinner table and decided "no disease is too rare to fight."  At that table, the Salla Treatment and Research (STAR) Foundation was born. Eight years later, the same group gathered, this time to celebrate the progress of a global consortium of researchers, and to recommit to continuing the fight against this rare genetic disorder. 

STAR Foundation has funded research within the Free Sialic Acid Storage Disorders (FSASD) Consortium that has made breakthroughs in developing gene editing approaches for FSASDs/Salla disease. Consortium researchers are now ready to test potential gene editors in preclinical models. If successful, these experiments could ultimately lead to clinical trials in Salla patients. 

To accelerate the testing of disease therapies, the STAR Foundation is looking to raise a minimum of $50,000 to support the new Translational Science Award(s), via grant applications reviewed for scientific merit by the global experts on the Foundation's Scientific Advisory Board. All our scientific progress is shared widely to help others. 

On behalf of our global community of over 100 families, thank you for your donation as we light the way together as we keep fighting

Donations are accepted in multiple currencies and many formats.  For donations via donor advised funds or for larger donations, please contact info@star-foundation.io for wire transfer information.