$68,469.63

Raised

Donations

$100,000

Goal

Help translate our science to patients!


The Free Sialic Acid Storage Disorder (FSASD) Consortium has made breakthroughs in understanding the basic science behind Salla Disease and is now looking to test potential drug therapies in pre-clinical models. If successful, these experiments could lead to clinical trials in Salla patients!


To accelerate testing of candidate therapies, STAR is looking to raise a minimum of $100,000 to support a new Translational Award, with grant applications reviewed by our Scientific Advisory Board. 


Thank you for being part of this exciting progress!  For larger donations, please email [email protected] for wire transfer information. 


The Salla Treatment and Research Foundation ("A STAR for Ben, Inc.") is a 501 (c) 3 tax-exempt charitable organization dedicated to supporting and advancing Salla disease treatments, research, education, awareness, and family networks.