Salla Treatment and Research Foundation

$9,723.28

Raised

Donations

$100,000

Goal

Relentlessly pursuing a cure for Salla disease

The Salla Treatment and Research (STAR) Foundation is dedicated to supporting Salla disease research, treatment, education, awareness, and family networks.

Salla Disease is the most prevalent Free Sialic Acid Storage Disorder (FSASD), a family of genetic diseases caused by the accumulation of the natural sugar, sialic acid. The disease primarily impacts the central nervous system causing serious developmental and cognitive delays.

23,000 patients worldwide are estimated to be affected by FSASD but, due to poor disease awareness, only about 300 cases have been reported.

To accelerate the development of new therapies, the STAR Foundation is helping to enable innovative drug discovery, basic research, clinical studies and improved diagnosis.

The Salla Treatment and Research Foundation ("A STAR for Ben, Inc.") is a 501 (c) 3 tax-exempt charitable organization dedicated to supporting and advancing Salla disease treatments, research, education, awareness, and family networks.