RG Giving






Help support Rare Genomics!

As a non-profit organization, the Rare Genomics Institute (RG) depends on its volunteer community to help individuals and families with rare genetic disorders.  Our work often leads them to research, diagnosis, and even treatment. 

But we CANNOT do it alone – We need your help!

Please help us by making a donation so that RG can continue supporting the pro-bono services that make a difference in the lives of people with rare diseases.  Your contribution will help support a child who in the past could not get a proper diagnosis or treatment.

Thank you for your support!



Staff at Rare Genomics Institute


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Rare Genomics Institute is a 501(c)(3) charitable non-profit organization. Donations to our organization are tax deductible and made with the understanding that Rare Genomics Institute has ultimate discretion and control over the use of donated funds. All donations, even those made to specific crowdfunding campaigns, are intended for Rare Genomics Institute, not any specific individual or cause. Donations to specific crowdfunding campaigns are considered spending recommendations, and while Rare Genomics Institute will make good faith efforts to effectuate each donor’s preference to support an individual or cause, per IRS rules on tax deductibility, Rare Genomics Institute has complete discretion and control over the use of all such donations.