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Help support the Rare Genomics Institute 

The Rare Genomics Institute is a 501(c)3 non-profit with a big dream - to help all those struggling with rare diseases to have a hope to progress and cure. In addition to the individual patient campaigns, we create general infrastructure to help one day enable any one do any research for any disease. Our programs include not only genetic sequencing and research, but also educational, awareness, and capacity building. We hope to best use our little funds to leverage great impact! Thanks for supporting Rare Genomics Institute and may we help many families together.



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Rare Genomics Institute is a 501(c)(3) charitable non-profit organization. Donations to our organization are tax deductible and made with the understanding that Rare Genomics Institute has ultimate discretion and control over the use of donated funds. All donations, even those made to specific crowdfunding campaigns, are intended for Rare Genomics Institute, not any specific individual or cause. Donations to specific crowdfunding campaigns are considered spending recommendations, and while Rare Genomics Institute will make good faith efforts to effectuate each donor’s preference to support an individual or cause, per IRS rules on tax deductibility, Rare Genomics Institute has complete discretion and control over the use of all such donations.