In Honor Of Parker

$7,749.16

Raised

Donations

$20,000

Goal

In Honor of Parker:

Friends and Family, we are so thankful for your love, support and prayers. We are eternally grateful for any donation amount to bring us one step closer to finding a cure to end NF2 for Parker and everyone else battling with NF2.

We received Parker’s diagnosis in 2018 at the age of 19. The year prior he had a very large Schwannoma removed in his upper abdominal area. We noticed this lump there for some time and the Local dr’s kept watching it. It started to become bothersome so surgery was recommended. Little did we know that this surgery would start the beginnings of our NF2 journey.

The picture below shows the large tumor removed. After the tumor was removed the surgeon suspected NF2 and we went to genetic testing and it was confirmed. He is the first in our family to have this diagnosis. You can only imagine our shock and disbelief when we learned of this NF2 diagnosis.

We currently are seen by his team of Dr’s that we travel out of State across country every 6 months for repeat brain and yearly Spine MRI’s.

He has had gamma knife radiation to his right sided hearing nerve tumor in August of 2018 and started Avastin in April in 2019. An upcoming surgery to remove a tumor in the brachial plexus area and one in his upper back are scheduled in March 2021. He has numerous spine tumors that are just on a watch and wait. We are thankful for connecting with NF2 Biosolutions and believe whole heartedly
that a cure will be found. Currently there is no cure.

Parker will not let this condition stop him from enjoying live and truly does live life to the fullest.

I am honored to be the KY Ambassador for NF2 biosolutions to help my son and others to help educate, spread awareness, raise funds and to hopefully create a network of support for each other. Let’s help end NF2 together. If you would like to donate in honor of Parker please click on the link. We thank you for all your support.

NF2 BioSolutions is confident that gene/cell/immuno therapies for the NF2 rare disorder will be a cure and halt the progression of the tumors created by this disorder. Here are currently the 4 different novel approaches that NF2 BioSolutions non-profit is accelerating:

We are a 501(c)3 charitable organization. All donations are tax deductible. Or tax ID # is 83-0940046

Our donors

Amy Williams

donated

$50

Thank you to my Aunt Debbie and Uncle Ken for their generous cash donation. Love you both.

Amy Williams

donated

$100

So thankful for everyone’s dedication at NF2 Biosolutions to be the voice to help find a cure for NF2 for my son and all with NF2.

Amy Williams

donated

$103.83/M

Praying for a cure daily for my son and all others with NF2

Amy Williams

donated

$100/M

So thankful for this organization and their fight to end NF2. In honor of my Parker.

Jamie Osman

donated

$1,200

So thankful for all the friends that helped raise this donation for NF2 BioSolutions in honor of Parker! I will always be cheering you on! You have the best mom out there and I'm thankful for her friendship and the opportunity to help further this research for a cure!!

Amy Williams

donated

$250

Will always continue to create awareness and support until a cure can be found for NF2 to honor my son and all others with NF2. 💙💚💙💚

Amy

donated

$100

I will always fight for my son And do as much as possible to create awareness for NF2 and NF2 Biosolutions!