‘NF2 Information and Services’ (NF2_IS), is run by people with NF2 and families of people with NF2, who are looking to help others with NF2 live with the best Quality of Life while waiting for a cure.
NF2 Information and Services is an education-based charity with goals to educate doctors, nurses, medical students, researchers, and people with Neurofibromatosis Type 2 (NF2) about health risks and treatment options.
The organization's website is currently the sole means of education, but needs help in funding for operations to allow for:
- Print material about NF2 in doctors’ offices
- Educational videos about physical therapy options from home for better Quality of Life.
- Class availability to help the newly diagnosed know what they might face.
- Office space or a facility for operations where doctors can meet and discuss and debate treatments.
We need your help!
Learn More About NF2 Information and Services at https://www.nf2is.org/about_us.php
Learn More About NF2 (MERLIN) at https://www.nf2is.org/merlin.php
Services are not provided by NF2_IS. Services are simply methods of sharing information of organizations to contact for help with different issues, and different methods of sharing information about NF2 like print material and seminars.
The NF2_IS Board Members have a strict policy to guarantee no bias of information for services can occur by agreeing to not accepting sponsorship from any medical source. NF2_IS does not have goals to help individuals with personal medical issues, only clarity of facts to stop the serious issue of misinformation because few doctors know what NF2 is and have never even met an individual with NF2.
Every dollar is important and in things I have done to help others with very little funding should be proof enough of what I could do with every $1 donated. Please help by donating to NF2 Information and Services.
Donations by Mail
'NF2 Information and Services', Inc. EIN# 46-3767757.
NF2 Information and Services has been a corporation since September 2013 and a charity under section 501(c) (3), as a Public Charity Status of 509(a) (2) since July 2014
Checks or money orders can be sent by mail and made payable to:
NF2 Information and Services, Inc.
PO Box 714, Upton, NY 11973