"Once, on a wall inside the building of a kindergarten, I read a statement that I have remembered for a lifetime: “Our children are the most important project in our life.” I realized the full depth of its meaning after my child was diagnosed with a terrible diagnosis － Duchenne Muscular Dystrophy: Then I realized that now my job is to be a very strong mother in order to learn how to live with Misha’s disease. Duchenne Muscular Dystrophy is a genetic disease that affects mainly boys, manifests itself as muscle weakness, affects all muscles, starting from the legs and ending with the heart. At 9 years old, Mishutka stopped walking, now he is 12 and his hands are weakening, his spine is bending, walks to the street are all done hard work, but he’s still cheerful and active. He continues to fight! And I continue to work on his quality of life. Because my mother’s work is the most beloved and creative. And my son is the most important in my life and I try to make his life bright and active."
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#everychildhasvalue