Iowa PKU

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      Thank you for visiting the Iowa PKU Foundation's fundraising site. this is your opportunity to help us out. All proceeds will go to benefit the Iowa PKU Foundation in helping PKUers and their families across the state. We need your help to raise awareness, advocate and support Iowans who have PKU. 

      PKU is a genetic condition that people are born with. If untreated it will lead to severe mental handicaps. Treatment includes a severely limited diet that limits protein intake. Many PKUers can only handle about 8-9 grams of protein a day. The condition requires the restricted diet for life to avoid serious medical conditions and mental health problems. In the state of Iowa, there are approximately 150 people with PKU. 

      We ask that you think about setting up a monthly donation to help support families with PKU. Advocating and supporting PKUers is expensive. A day of medical formula, which is where PKUers get about 70% of their nutrition, costs over $13.00 everyday for an 8-year-old.  A loaf of bread is $13.99 before shipping and many insurance plans don't cover formula or food, and even if they do, deductibles and out of pocket maximums are rising fast. Educating lawmakers takes time and effort. 

      Right now we have needs for funding to help push through legislation that would mandate coverage, provide training and support to PKUers, and support research to find a cure. 

      Any donation is greatly appreciated, but I would love for you to think about setting up a monthly donation. Think about what it costs you to go out for dinner, and realize that is about what it costs per meal for a PKUer.  If you are single, skip one night out and donate it. If you are married, think of how much a night at the movie costs, and then realize that the cost of admission is cheaper than a day of formula. If you have kids, use this opportunity to show your kids how important it is to help others. You can remind them that a PKUer can't eat meat, dairy, nuts, wheat, beans, and even some fruits and vegetables have to be limited. 

      We truly appreciate any gift. Thank you,

      Iowa PKU Foundation

      The Iowa PKU Foundation is an Iowa 501(c)(3) charitable organization and contributions are tax-deductible for income, gift, and estate taxes. Our EIN is 72-1583631