Help Fund the Cure for WWOX






Children across the world are struggling. Each day they struggle to breathe, to see, to eat, to sleep, to walk and to talk. They suffer from onslaughts of countless seizures and fail to develop as a typical child.

The cause is hidden deep in their DNA in a gene called WWOX. Mutations of the WWOX gene is the cause of 2 devastating diseases, WOREE (WWOX-related Epileptic Encephalopathy) and SCAR12 (Spinocerebellar Ataxia-12). There are only 58 known cases of WOREE and SCAR12 worldwide. These diseases are stealing the futures of these children. The average lifespan of children with severe cases of WOREE syndrome is only 4 years of age.

But there is Hope. Researchers from around the world have banded together to find a cure. Recent laboratory testing has proven that mice with a WWOX mutation can be cured using a gene therapy treatment. However, funding for the research has been completely exhausted. Due to the extreme rarity of this disease funding is hard to come by and we need caring individuals such as yourself to help the cause.

-AUD $200,000 is required to complete the vital preclinical research and trial and a further,
-AUD $100,000 is required for the preclinical data to be reviewed and documented with the assistance of a third-party organisation to gain regulatory approval to proceed with a clinical trial.

Will you help provide hope for these children and their families by donating to the WWOX foundation?

There is no administrative overhead and each dollar donated goes directly to this life-saving research.

For more information about WWOX diseases and the WWOX Foundation please visit

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    WWOX FOUNDATION LIMITED (ABN: 90639202323) is registered with the Australian Charities and Not-for-profits Commission as a Health Promotion Charity. To ensure 100% of your donation goes towards research, you'll have the choice to cover the fees associated with your transaction before submitting. All donations over $2 are tax-deductible.

    Donor Wall302

    Elizabeth Roberts | £200

    Money raised from the Temple Spa evening 🥰

    Refiloe | R628.15

    Miah...My warrior Queen-Just like her mother

    Nick Monzu | A$208.12

    For Macy, Sammy and Tim

    Karen | $52.23

    On behalf Abuelito Rodolfo, for his grand babies Luke and Jack

    Alcock Family Foundation | A$1,038.86

    Suzie Richards

    Rick | A$21.20

    David Nylander | A$73.13

    Thinking of you Tim, Sammy and little Macy

    Andy Ringin | A$104.28

    Prayers up, Sammy, Macy & family!

    Shaminder Sahota | £10

    Good luck with the fundraising Shaminder :)

    Philip Newbury | A$8.22

    Phil newbury reindeer

    Elizabeth Roberts | £10

    On behalf of Dorothy and David x

    Christina Mehinagic | $22

    For the Pratt family. Praying for you ❤️

    Association Les rêves d emmy | 50 €

    De la part de M. et Mme FUSTEC, pour Emmy, qu'une remède soit réel pour les enfants WWOX

    Solange et Jérôme | 311,79 €

    Pour Mathéo, Robin et les autres enfants.

    Jose Miguel

    God Bless you Lucia

    Sarah Rooskrantz | R500

    The Favor of God, His Hands of Protection and Healing be upon Neyamiah and all the other 57 children. Guide and Direct the doctors to perform a excellent and Miracle job on our little children in Jesus Name Amen🙏🙏Glory to God 🙌👏

    Sunera James | R200

    4 all the WWOX Warriors❤️

    Jason & Nina | A$104.28

    For Macy

    Stephen | $200

    On behalf of Cindy Pugsley and the Sekisui Aerospace Paint Shop in Renton

    Elizabeth Roberts | £421

    First instalment if money raised from selling reindeer decorations!! Keep fighting everyone!!

    Anne | 1.038,68 €

    Pour Gabrielle et tous les autres petits guerriers. We fight together !

    Nelma Sanjines | A$500

    With love to all the WWOX warriors!

    Adrian & Vicki | £150

    For 2 amazing boys, Harry & George x

    Anonymous | A$31.59


    To all WWOX fighters from Lucia's family and friends in BOLIVIA (Beatriz, Brianna , Tatiana y Mildred)


    Sonja Voice | $52.23

    Sheena and Jason

    For our friends’ boys: Luke and Jack 💙

    Bé et Nico

    Pour Mathéo, Robin et tous les enfants WWOX du monde entier. Pour que la thérapie vous soit profitable au plus vite!