Help Fund the Cure for WWOX

A$194,007.70

Raised

Donations

A$300,000

Goal


Children across the world are struggling. Each day they struggle to breathe, to see, to eat, to sleep, to walk and to talk. They suffer from onslaughts of countless seizures and fail to develop as a typical child.

The cause is hidden deep in their DNA in a gene called WWOX. Mutations of the WWOX gene is the cause of 2 devastating diseases, WOREE (WWOX-related Epileptic Encephalopathy) and SCAR12 (Spinocerebellar Ataxia-12). There are only 58 known cases of WOREE and SCAR12 worldwide. These diseases are stealing the futures of these children. The average lifespan of children with severe cases of WOREE syndrome is only 4 years of age.

But there is Hope. Researchers from around the world have banded together to find a cure. Recent laboratory testing has proven that mice with a WWOX mutation can be cured using a gene therapy treatment. However, funding for the research has been completely exhausted. Due to the extreme rarity of this disease funding is hard to come by and we need caring individuals such as yourself to help the cause.

-AUD $200,000 is required to complete the vital preclinical research and trial and a further,
-AUD $100,000 is required for the preclinical data to be reviewed and documented with the assistance of a third-party organisation to gain regulatory approval to proceed with a clinical trial.

Will you help provide hope for these children and their families by donating to the WWOX foundation?

There is no administrative overhead and each dollar donated goes directly to this life-saving research.


For more information about WWOX diseases and the WWOX Foundation please visit wwox.org

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    WWOX FOUNDATION LIMITED (ABN: 90639202323) is registered with the Australian Charities and Not-for-profits Commission as a Health Promotion Charity. To ensure 100% of your donation goes towards research, you'll have the choice to cover the fees associated with your transaction before submitting. All donations over $2 are tax-deductible.

    Donor Wall302

    Samanta | 62,56 €

    De parte de Ian y su mamá, para su amiguita Zoe y los demas nenes de la asociación. Lo vais a conseguir!!! 💪💪

    Antonio | 104,10 €

    De parte de Elena, Sara y Antonio, para todos estos niños y en especial para Zoe.

    José María | 342,94 €

    De parte de la familia Sánchez Castillo para todos estos [email protected] y en especial a Zoe que es un sol.

    José María | A$1,038.84

    Para Zoe con todo nuestro cariño y sus nuevos amigos de la fundación.

    Teresa Martinez | 200 €

    Marina | 50 €

    Para nuestra Zoe. Marina Román.

    Papás Zoe Valiente | 20 €

    Para mi primita Zoe

    Anonymous

    To little Matias and all those little warriors! 🙏🏼💞

    Michelle Serrano | A$31.57

    For Handsome little Matias and all the beautiful babies out there

    Cheryl Yamasaki | $104.15

    For Matias and the other WWOX children!

    Papás Zoe | 1.000 €

    Liz Hitchcock | £21

    On behalf of two wonderfully kind children- Ewan and Niamh Casey - who asked for a donation on their behalf instead of a Christmas

    Elizabeth Roberts | £614

    Final instalment of money from raffle, reindeer and Christmas cards!

    Ed and Renee | A$645

    "Partnering with you to support the great work of the WWOX Foundation" Ed and Renee

    Laura Catterall | £25

    I have been delighted to help support this foundation! It's very close to my heart so I hope you raise enough Money to help everyone who is affected by it. Laura Catterall X

    Deborah | £12

    Beautiful Christmas decorations and gift tags xx donated for Liz Roberts and her family . Fingers crossed now for the raffle

    Mel | 150 €

    Pour Mathéo, Robin et tous leurs copains, de la part de tonton Fred et de tata Mel

    Sue Mechan | £10.62

    This is for all the WWOX Warriors especially Harry & George Roberts who are two beautiful boys. 💙💙

    Sally | £8.03

    Elizabeth Roberts | £30

    On behalf of Gerry Humphries - for Harry, George and all the WWOX warriors

    Anonymous | A$13,233.81

    For Luke and Jack and all the WWOX Warriors!

    Parisa David | £5.43

    Jane and Matt | £5.43

    Rob | A$73.12

    For little Macy.

    Association Les rêves d emmy | 1.000 €

    De la part de l association les enfants de trestel

    Mt. Hawthorn | A$55

    Renee | A$31.58

    Brooke | A$52.35

    I just saw your story on Yelo's instagram. Sending positive vibes your way little Macy xx

    Jono | A$104.27

    You guys are incredible! Much love to Macy, Tim and Sammy from Jono, Ainz and Elle.

    James Teakle | A$104.27

    No words. You three are incredible.