Help Fund the Cure for WWOX

A$194,387.63

Raised

Donations

A$300,000

Goal


Children across the world are struggling. Each day they struggle to breathe, to see, to eat, to sleep, to walk and to talk. They suffer from onslaughts of countless seizures and fail to develop as a typical child.

The cause is hidden deep in their DNA in a gene called WWOX. Mutations of the WWOX gene is the cause of 2 devastating diseases, WOREE (WWOX-related Epileptic Encephalopathy) and SCAR12 (Spinocerebellar Ataxia-12). There are only 58 known cases of WOREE and SCAR12 worldwide. These diseases are stealing the futures of these children. The average lifespan of children with severe cases of WOREE syndrome is only 4 years of age.

But there is Hope. Researchers from around the world have banded together to find a cure. Recent laboratory testing has proven that mice with a WWOX mutation can be cured using a gene therapy treatment. However, funding for the research has been completely exhausted. Due to the extreme rarity of this disease funding is hard to come by and we need caring individuals such as yourself to help the cause.

-AUD $200,000 is required to complete the vital preclinical research and trial and a further,
-AUD $100,000 is required for the preclinical data to be reviewed and documented with the assistance of a third-party organisation to gain regulatory approval to proceed with a clinical trial.

Will you help provide hope for these children and their families by donating to the WWOX foundation?

There is no administrative overhead and each dollar donated goes directly to this life-saving research.


For more information about WWOX diseases and the WWOX Foundation please visit wwox.org

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    WWOX FOUNDATION LIMITED (ABN: 90639202323) is registered with the Australian Charities and Not-for-profits Commission as a Health Promotion Charity. To ensure 100% of your donation goes towards research, you'll have the choice to cover the fees associated with your transaction before submitting. All donations over $2 are tax-deductible.

    Donor Wall303

    Jeanne Hultgrenn | A$73.10

    In honor of Stphen, Karen, Luke, Jack and Russell Prat

    Papás Zoe | 200 €

    De parte de Mari Paz, Óscar y su familia para Zoe. Muchas gracias

    Mateo Hernández Rubio | 10,64 €

    Para ese apoyo que tanta falta os hace

    Inma Cuenca | A$831.15

    Fuerza desde Alicante para la pequeña guerrera Zoe de parte de Itziar, Juanmi e Inma

    Cristiane Aparecida Rodrigues da silva | R$1.040,01

    Com muito carinho para o Matheus Rodrigues e todas essas crianças lindas e guerreiras que a cura para a mutação wwox aconteça o mais breve possível.

    Deni Silva | R$1.040,01

    Para todos os guerreiros WWOX e principalmente para o Matheus Rodrigues🇧🇷 Que todos estejam curados o mais breve possível.

    Andrea

    Todo va a salir bien. Os mandamos mucha fuerza desde Alicante

    Barb | A$208.09

    Anonymous | $5,192.42

    For Luke, Jack and all WWOX warriors

    Dale Kettern | 41,79 €

    Emily Tully | £25

    Donating on behalf of Elizabeth Roberts fundraising for Harry and George.

    Raquel Munera | 41,79 €

    Para la pequeña Zoe con mucho cariño!! Eres una súper guerrera y junto a tus papis vais a conseguir lo que tanto deseáis! Formáis un súper equipazo juntos!! Un abrazo gigante FAMILIA!!

    Anonymous

    Desde Caudete

    Aránzazu Bravo | 21,03 €

    Fuerza Zoe! Familia Díaz Bravo

    Tere Hernández Mora | A$30

    Rebekah | $104.15

    Thank you for helping find a way for resolutions.

    Nadine Estrella | £10

    XAVIER

    De Xavi, Victoria y Paula para Zoe. De Crevillent para Villena. WE FIGHT TOGETHER!

    Familia Gisbert-Garcia Villeneros | 52,18 €

    De la familia villenera Gisbert-Garcia. Mucho ánimo campeones! Alberto y Ana le mandan un besito a Zoe.

    Carmen | 52,18 €

    Mucha fuerza para Zoe y su familia. Ojalá se consiga 🙏❤️💪 Gustavo y Carmen.

    Patricia Tortosa | 50 €

    Todo nuestro apoyo a Zoe y su familia

    Ana Graciela Vega | 19,99 €

    Ánimo familia

    Alberto Ferriz-Valero | 19 €

    Mucha suerte en la investigación, ojalá recibáis la ayuda necesaria.

    Mari Colomar | 40 €

    De las hermanas Colomar, ánimo Zoe!!!

    Mavi

    Desiree

    Mucho ánimo en vuestra lucha. Un abrazo para Zoe y su familia

    ANDREA

    Muchísimo ánimo a todos los niños y papas de la asociación, en especial a Zoe. Vamos campeones!!! Alvaro y Andrea

    Clara N M

    Con todo nuestro cariño nos unimos a vuestra lucha, por todos ellos y en especial por Zoe y sus papás.

    Andrea Marco | 45,95 €

    Yolanda | 19,99 €

    Ánimo Zoe. Eres una guerrera.