Help Fund the Cure for WWOX

A$194,007.70

Raised

Donations

A$300,000

Goal


Children across the world are struggling. Each day they struggle to breathe, to see, to eat, to sleep, to walk and to talk. They suffer from onslaughts of countless seizures and fail to develop as a typical child.

The cause is hidden deep in their DNA in a gene called WWOX. Mutations of the WWOX gene is the cause of 2 devastating diseases, WOREE (WWOX-related Epileptic Encephalopathy) and SCAR12 (Spinocerebellar Ataxia-12). There are only 58 known cases of WOREE and SCAR12 worldwide. These diseases are stealing the futures of these children. The average lifespan of children with severe cases of WOREE syndrome is only 4 years of age.

But there is Hope. Researchers from around the world have banded together to find a cure. Recent laboratory testing has proven that mice with a WWOX mutation can be cured using a gene therapy treatment. However, funding for the research has been completely exhausted. Due to the extreme rarity of this disease funding is hard to come by and we need caring individuals such as yourself to help the cause.

-AUD $200,000 is required to complete the vital preclinical research and trial and a further,
-AUD $100,000 is required for the preclinical data to be reviewed and documented with the assistance of a third-party organisation to gain regulatory approval to proceed with a clinical trial.

Will you help provide hope for these children and their families by donating to the WWOX foundation?

There is no administrative overhead and each dollar donated goes directly to this life-saving research.


For more information about WWOX diseases and the WWOX Foundation please visit wwox.org

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    WWOX FOUNDATION LIMITED (ABN: 90639202323) is registered with the Australian Charities and Not-for-profits Commission as a Health Promotion Charity. To ensure 100% of your donation goes towards research, you'll have the choice to cover the fees associated with your transaction before submitting. All donations over $2 are tax-deductible.

    Donor Wall302

    Marina Román | 52,17 €

    De Loli (Denia) para nuestra Zoe.

    Deni Silva | R$209,30

    Das Tias Nina e Maria para o Matheus, força Deni e Cris muita fé que todas as crianças deram curadas.

    Deni Silva | R$1.040,04

    Dinheiro arrecadado da Rifa de Natal feita na clínica de fonoterapia (FonoSim) do Matheus Rodrigues da Silva e venda das reciclagens. Para todas as crianças wwox, amamos a todos.

    Antonia Maestre Hernández | 104,10 €

    Para Zoe, de una amiga común de tus abuelas.

    Juan Miguel Camús Martínez | 550 €

    Para Zoe, de sus tíos de Madrid

    Eric | 1.038,67 €

    For Gabrielle and all of our childrens

    Elizabeth Roberts | £36

    Money raised from Jackie at Alex physio dept selling crafts plus more Christmas crafts.

    Antonio Espinosa

    De parte de Espinosa y María Luisa.Mucha fuerza y ánimo 💪👨‍👩‍👧

    Papás Zoe | 1.200 €

    Donación benéfica del C.F. Fair Play Villena para Zoe y todos los guerreros WWOX

    Papás Zoe | 40 €

    De parte de José Ortín y Ana Mora, una familia villenera. Muchas gracias

    Macarena | 50 €

    Sandra Hernández | 45,95 €

    Abuelita zoe | 311,79 €

    Para mi princesa de su abuelita

    Papás Zoe | 100 €

    De parte de la familia Abellán García. Muchas gracias

    Papás Zoe | 100 €

    De parte de Ana Celi, para la más valiente de mi familia haciendo mención al apellido VALIENTE.

    Brad | $200

    Merry Christmas Luke and Jack Pratt! Uncle Brad and the girls

    FLORIAN ABELLÁN AMOROS | 415,63 €

    Para Zoe con mucho amor

    Anonymous | $5,192.42

    Merry Christmas Jack & Luke!

    Nana

    In honour of Kynlei Shanafelt!!

    Lori Kesl

    Merry Christmas Kynlie S.!

    Chelsea

    Merry Christmas Kyn!

    Courtney Moodry | $26.27

    Papás Zoe Valiente | 50 €

    De parte de Julia, mucha fuerza y toda mi buena energía. Gracias

    Antonio | 50 €

    Golia non ha scampo! I piccoli sono sempre più forti dei grandi... ADR

    John Riddiough | £207.91

    On behalf of Sophie and Joe

    Gianna Rando | 50 €

    per Davide e per tutti i piccoli guerrieri.

    Jeroen Bomhof | A$52.34

    Ralph

    Because we love the Pratt family

    Melanie Miranda | 20 €

    Todo es posible. Mucho ánimo.

    Jeanne Hultgrenn | A$73.10

    In honor of Stphen, Karen, Luke, Jack and Russell Prat