Help Fund the Cure for WWOX

A$242,017.67

Raised

Donations

A$300,000

Goal


Children across the world are struggling. Each day they struggle to breathe, to see, to eat, to sleep, to walk and to talk. They suffer from onslaughts of countless seizures and fail to develop as a typical child.

The cause is hidden deep in their DNA in a gene called WWOX. Mutations of the WWOX gene is the cause of 2 devastating diseases, WOREE (WWOX-related Epileptic Encephalopathy) and SCAR12 (Spinocerebellar Ataxia-12). There are only 58 known cases of WOREE and SCAR12 worldwide. These diseases are stealing the futures of these children. The average lifespan of children with severe cases of WOREE syndrome is only 4 years of age.

But there is Hope. Researchers from around the world have banded together to find a cure. Recent laboratory testing has proven that mice with a WWOX mutation can be cured using a gene therapy treatment. However, funding for the research has been completely exhausted. Due to the extreme rarity of this disease funding is hard to come by and we need caring individuals such as yourself to help the cause.

-AUD $200,000 is required to complete the vital preclinical research and trial and a further,
-AUD $100,000 is required for the preclinical data to be reviewed and documented with the assistance of a third-party organisation to gain regulatory approval to proceed with a clinical trial.

Will you help provide hope for these children and their families by donating to the WWOX foundation?

There is no administrative overhead and each dollar donated goes directly to this life-saving research.


For more information about WWOX diseases and the WWOX Foundation please visit wwox.org


WWOX FOUNDATION LIMITED (ABN: 90639202323) is registered with the Australian Charities and Not-for-profits Commission as a Health Promotion Charity. To ensure 100% of your donation goes towards research, you'll have the choice to cover the fees associated with your transaction before submitting. All donations over $2 are tax-deductible.

Our donors

AE

Antonio Espinosa

De parte de Espinosa y María Luisa.Mucha fuerza y ánimo 💪👨‍👩‍👧

P

Papás Zoe

donated

€1,200

Donación benéfica del C.F. Fair Play Villena para Zoe y todos los guerreros WWOX

P

Papás Zoe

donated

€40

De parte de José Ortín y Ana Mora, una familia villenera. Muchas gracias

M

Macarena

donated

€50

SH

Sandra Hernández

donated

€45.95

A

Abuelita zoe

donated

€311.79

Para mi princesa de su abuelita

P

Papás Zoe

donated

€100

De parte de la familia Abellán García. Muchas gracias

P

Papás Zoe

donated

€100

De parte de Ana Celi, para la más valiente de mi familia haciendo mención al apellido VALIENTE.

B

Brad

donated

$200

Merry Christmas Luke and Jack Pratt! Uncle Brad and the girls

FA

FLORIAN ABELLÁN AMOROS

donated

€415.63

Para Zoe con mucho amor

DP

Anonymous

donated

$5,192.42

Merry Christmas Jack & Luke!

N

Nana

In honour of Kynlei Shanafelt!!

LK

Lori Kesl

Merry Christmas Kynlie S.!

C

Chelsea

Merry Christmas Kyn!

CM

Courtney Moodry

donated

$26.27

PV

Papás Zoe Valiente

donated

€50

De parte de Julia, mucha fuerza y toda mi buena energía. Gracias

A

Antonio

donated

€50

Golia non ha scampo! I piccoli sono sempre più forti dei grandi... ADR

JR

John Riddiough

donated

£207.91

On behalf of Sophie and Joe

GR

Gianna Rando

donated

€50

per Davide e per tutti i piccoli guerrieri.

JB

Jeroen Bomhof

donated

A$52.34

R

Ralph

Because we love the Pratt family

MM

Melanie Miranda

donated

€20

Todo es posible. Mucho ánimo.

JH

Jeanne Hultgrenn

donated

A$73.10

In honor of Stphen, Karen, Luke, Jack and Russell Prat

P

Papás Zoe

donated

€200

De parte de Mari Paz, Óscar y su familia para Zoe. Muchas gracias

MH

Mateo Hernández Rubio

donated

€10.64

Para ese apoyo que tanta falta os hace

IC

Inma Cuenca

donated

A$831.15

Fuerza desde Alicante para la pequeña guerrera Zoe de parte de Itziar, Juanmi e Inma

CS

Cristiane Silva

donated

R$1,040.01

Com muito carinho para o Matheus Rodrigues e todas essas crianças lindas e guerreiras que a cura para a mutação wwox aconteça o mais breve possível.

DS

Deni Silva

donated

R$1,040.01

Para todos os guerreiros WWOX e principalmente para o Matheus Rodrigues🇧🇷 Que todos estejam curados o mais breve possível.

A

Andrea

Todo va a salir bien. Os mandamos mucha fuerza desde Alicante

B

Barb

donated

A$208.09