Help Fund the Cure for WWOX






Children across the world are struggling. Each day they struggle to breathe, to see, to eat, to sleep, to walk and to talk. They suffer from onslaughts of countless seizures and fail to develop as a typical child.

The cause is hidden deep in their DNA in a gene called WWOX. Mutations of the WWOX gene is the cause of 2 devastating diseases, WOREE (WWOX-related Epileptic Encephalopathy) and SCAR12 (Spinocerebellar Ataxia-12). There are only 58 known cases of WOREE and SCAR12 worldwide. These diseases are stealing the futures of these children. The average lifespan of children with severe cases of WOREE syndrome is only 4 years of age.

But there is Hope. Researchers from around the world have banded together to find a cure. Recent laboratory testing has proven that mice with a WWOX mutation can be cured using a gene therapy treatment. However, funding for the research has been completely exhausted. Due to the extreme rarity of this disease funding is hard to come by and we need caring individuals such as yourself to help the cause.

-AUD $200,000 is required to complete the vital preclinical research and trial and a further,
-AUD $100,000 is required for the preclinical data to be reviewed and documented with the assistance of a third-party organisation to gain regulatory approval to proceed with a clinical trial.

Will you help provide hope for these children and their families by donating to the WWOX foundation?

There is no administrative overhead and each dollar donated goes directly to this life-saving research.

For more information about WWOX diseases and the WWOX Foundation please visit

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Fight with us and help to provide hope to our children

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    WWOX FOUNDATION LIMITED (ABN: 90639202323) is registered with the Australian Charities and Not-for-profits Commission as a Health Promotion Charity. To ensure 100% of your donation goes towards research, you'll have the choice to cover the fees associated with your transaction before submitting. All donations over $2 are tax-deductible.

    Donor Wall302

    Diane Pratt | $1,038.73

    Praying for a cure for our super hero grandsons, Luke and Jack.


    For the Pratt boys. Thank you WWOX foundation for the wonderful work!

    Charlotte | £10.62

    Anna | £52.16

    Such incredible work. This is for Lara and Maddie xxxx

    Hilary Dunkerton | A$31.59

    Vicky Baker | £15.82

    Thank you for our lovely reindeer Liz x

    Sue | £26.20

    With special good wishes to Harry and George and lots of love to all the family. Sue B x

    Sharon and David Cohen | A$1,038.86

    To JM, KS and Lucia for your strength and unwavering commitment

    Emma Sweeney | £5


    Siobhan | £5.43

    Laura Starkey | £10.62

    Systemnet | A$1,038.86

    Alyce D’Ortona

    Lots of love to all the WWOX Warriors, especially Macy and the Fitzpatrick family. Aly & Joe XX

    Diane | $311.84

    Anna | A$31.59

    With love to all of the children, especially Lucia ❤️ love Anna, John, Jack and Harry xxxx

    Emma Habershon | £21.01

    Keep on fighting and never give up. Big love to all, but special hugs and kisses for Harry and George xxx

    Becki Kenney | £15.82

    CAROL PAGETT | £31.39

    With love for all these children, especially Harry and George. Carol x

    Elomise Groombridge | £40.74

    Good luck to each and every one of you..spendings hugs to u all xx


    Lorna | £31.39

    Benadette Howard | A$104.28

    A dear friend Sharon has her only granddaughter with this disease, hence my donation.

    Nicole Piani | A$50

    Susan and Daniel Slee | A$52.36

    From a fellow rare genetic disease family, keep fighting and spreading the word. The future of gene therapy looks bright. Sending Love to Sam, Tim and Macy x

    Lee Pain | A$208.12

    good luck sammy, tim and macy!! sending positive thoughts !

    Lesley Fitzpatrick | A$104.28

    Annie | A$31.59

    Supporting all the gorgeous children but especially Harry and George(y!). Lots of love, Theo and Izzie xxx

    Meg Donnell | A$31.59

    amy | £10.62

    for Harry and George, we fight together ❤