Help Fund the Cure for WWOX
A$242,392.42
已募集
867
捐款
A$300,000
目标
Children across the world are struggling. Each day they struggle to breathe, to see, to eat, to sleep, to walk and to talk. They suffer from onslaughts of countless seizures and fail to develop as a typical child.
The cause is hidden deep in their DNA in a gene called WWOX. Mutations of the WWOX gene is the cause of 2 devastating diseases, WOREE (WWOX-related Epileptic Encephalopathy) and SCAR12 (Spinocerebellar Ataxia-12). There are only 58 known cases of WOREE and SCAR12 worldwide. These diseases are stealing the futures of these children. The average lifespan of children with severe cases of WOREE syndrome is only 4 years of age.
But there is Hope. Researchers from around the world have banded together to find a cure. Recent laboratory testing has proven that mice with a WWOX mutation can be cured using a gene therapy treatment. However, funding for the research has been completely exhausted. Due to the extreme rarity of this disease funding is hard to come by and we need caring individuals such as yourself to help the cause.
-AUD $200,000 is required to complete the vital preclinical research and trial and a further,
-AUD $100,000 is required for the preclinical data to be reviewed and documented with the assistance of a third-party organisation to gain regulatory approval to proceed with a clinical trial.
Will you help provide hope for these children and their families by donating to the WWOX foundation?
There is no administrative overhead and each dollar donated goes directly to this life-saving research.
For more information about WWOX diseases and the WWOX Foundation please visit wwox.org
我们的捐赠者
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RITA IORIO
已捐赠
R$520.88
Carol Lilla’s birthday party
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Karen
已捐赠
$289.95
From the Lynch Creek Farms Christmas Wreaths Campaign
JL
José Lilla
已捐赠
R$520.88
Carol Lilla’s birthday party
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Talita
已捐赠
R$301.78
EB
Estefanía Boaglio
已捐赠
€46.99
Fuerza y perseverancia!!! Ánimo Zoe y a toda la familia!
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Agustín
已捐赠
€311.79
Para tod@s l@s guerrer@s, especialmente para Zoe. Con mucho cariño de la familia Navarro Olcina
ER
Elizabeth Roberts
已捐赠
£300
Kindly raised by Alexandra hospital Physiotherapy department bake sale
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Association
已捐赠
€1,000
Merci aux nombreux donateurs pour Emmy et les enfants
CL
Carolina Lilla
已捐赠
$2,077.15
Carol Lilla’s birthday party
FE
Felix & Aubrey España
已捐赠
$62.62
Stephen Pratt.....your polar bear plunge was awesome!
DP
Anonymous
已捐赠
$52.23
From Marian Holm for Luke & Jack
MG
Mary Grunewald
IC
Anonymous
已捐赠
A$104.25
Mucho ánimo! Toda la suerte del mundo! Va ir todo bien. Irene
MS
Maecenata Stiftung
已捐赠
A$37,719.50
Donations from Germany for funding the cure of WWOX diseases!
RM
Raquel Martínez Escuder
已捐赠
€52.17
Para que estos niños tengan la mejor vida posible. De parte de José María, Hernán y Raquel. Biar (Alicante)
FM
Francisco Javier Molina
已捐赠
€20
Para Zoe, de parte de Molina y Cristina, amigos de la familia, queremos aportar nuestro pequeño granito de arena!
ED
Eva Domene
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Blanca
已捐赠
€52.17
Para que cada granito de arena ayude en la lucha de estos niños valientes y en especial para la guerrera Zoe
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Anonymous
JL
Juan López
已捐赠
€5
Zoe ❤
MG
Hormel Foods Corporation
已捐赠
A$52.33
PS
Pilar Sanchez
已捐赠
€156.01
De Pilar (Madre Tamy) y Matías para Zoe. Mucha fuerza
A
Abuelita zoe
已捐赠
€100
Con cariño para zoe
LG
Loli Gonzalez
已捐赠
€52.17
De Loli (Denia) para nuestra Zoe.
TT
Tia Maria Tia Nina
已捐赠
R$209.30
Das Tias Nina e Maria para o Matheus, força Deni e Cris muita fé que todas as crianças deram curadas.
DR
Deni Rodrigues da Silva
已捐赠
R$1,040.04
Dinheiro arrecadado da Rifa de Natal feita na clínica de fonoterapia (FonoSim) do Matheus Rodrigues da Silva e venda das reciclagens. Para todas as crianças wwox, amamos a todos.
AM
Antonia Maestre Hernández
已捐赠
€104.10
Para Zoe, de una amiga común de tus abuelas.
JC
Juan Miguel Camús Martínez
已捐赠
€550
Para Zoe, de sus tíos de Madrid
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Eric
已捐赠
€1,038.67
For Gabrielle and all of our childrens
ER
Elizabeth Roberts
已捐赠
£36
Money raised from Jackie at Alex physio dept selling crafts plus more Christmas crafts.