Help Fund the Cure for WWOX
A$242,392.42
已募集
867
捐款
A$300,000
目标
Children across the world are struggling. Each day they struggle to breathe, to see, to eat, to sleep, to walk and to talk. They suffer from onslaughts of countless seizures and fail to develop as a typical child.
The cause is hidden deep in their DNA in a gene called WWOX. Mutations of the WWOX gene is the cause of 2 devastating diseases, WOREE (WWOX-related Epileptic Encephalopathy) and SCAR12 (Spinocerebellar Ataxia-12). There are only 58 known cases of WOREE and SCAR12 worldwide. These diseases are stealing the futures of these children. The average lifespan of children with severe cases of WOREE syndrome is only 4 years of age.
But there is Hope. Researchers from around the world have banded together to find a cure. Recent laboratory testing has proven that mice with a WWOX mutation can be cured using a gene therapy treatment. However, funding for the research has been completely exhausted. Due to the extreme rarity of this disease funding is hard to come by and we need caring individuals such as yourself to help the cause.
-AUD $200,000 is required to complete the vital preclinical research and trial and a further,
-AUD $100,000 is required for the preclinical data to be reviewed and documented with the assistance of a third-party organisation to gain regulatory approval to proceed with a clinical trial.
Will you help provide hope for these children and their families by donating to the WWOX foundation?
There is no administrative overhead and each dollar donated goes directly to this life-saving research.
For more information about WWOX diseases and the WWOX Foundation please visit wwox.org
我们的捐赠者
AE
Antonio Espinosa
De parte de Espinosa y María Luisa.Mucha fuerza y ánimo 💪👨👩👧
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Papás Zoe
已捐赠
€1,200
Donación benéfica del C.F. Fair Play Villena para Zoe y todos los guerreros WWOX
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Papás Zoe
已捐赠
€40
De parte de José Ortín y Ana Mora, una familia villenera. Muchas gracias
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Macarena
已捐赠
€50
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Sandra Hernández
已捐赠
€45.95
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Abuelita zoe
已捐赠
€311.79
Para mi princesa de su abuelita
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Papás Zoe
已捐赠
€100
De parte de la familia Abellán García. Muchas gracias
P
Papás Zoe
已捐赠
€100
De parte de Ana Celi, para la más valiente de mi familia haciendo mención al apellido VALIENTE.
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Brad
已捐赠
$200
Merry Christmas Luke and Jack Pratt! Uncle Brad and the girls
FA
FLORIAN ABELLÁN AMOROS
已捐赠
€415.63
Para Zoe con mucho amor
DP
Anonymous
已捐赠
$5,192.42
Merry Christmas Jack & Luke!
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Nana
In honour of Kynlei Shanafelt!!
LK
Lori Kesl
Merry Christmas Kynlie S.!
C
Chelsea
Merry Christmas Kyn!
CM
Courtney Moodry
已捐赠
$26.27
PV
Papás Zoe Valiente
已捐赠
€50
De parte de Julia, mucha fuerza y toda mi buena energía. Gracias
A
Antonio
已捐赠
€50
Golia non ha scampo! I piccoli sono sempre più forti dei grandi... ADR
JR
John Riddiough
已捐赠
£207.91
On behalf of Sophie and Joe
GR
Gianna Rando
已捐赠
€50
per Davide e per tutti i piccoli guerrieri.
JB
Jeroen Bomhof
已捐赠
A$52.34
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Ralph
Because we love the Pratt family
MM
Melanie Miranda
已捐赠
€20
Todo es posible. Mucho ánimo.
JH
Jeanne Hultgrenn
已捐赠
A$73.10
In honor of Stphen, Karen, Luke, Jack and Russell Prat
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Papás Zoe
已捐赠
€200
De parte de Mari Paz, Óscar y su familia para Zoe. Muchas gracias
MH
Mateo Hernández Rubio
已捐赠
€10.64
Para ese apoyo que tanta falta os hace
IC
Inma Cuenca
已捐赠
A$831.15
Fuerza desde Alicante para la pequeña guerrera Zoe de parte de Itziar, Juanmi e Inma
CS
Cristiane Silva
已捐赠
R$1,040.01
Com muito carinho para o Matheus Rodrigues e todas essas crianças lindas e guerreiras que a cura para a mutação wwox aconteça o mais breve possível.
DS
Deni Silva
已捐赠
R$1,040.01
Para todos os guerreiros WWOX e principalmente para o Matheus Rodrigues🇧🇷 Que todos estejam curados o mais breve possível.
A
Andrea
Todo va a salir bien. Os mandamos mucha fuerza desde Alicante
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Barb
已捐赠
A$208.09