Help Fund the Cure for WWOX

A$242,017.67

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捐款

A$300,000

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Children across the world are struggling. Each day they struggle to breathe, to see, to eat, to sleep, to walk and to talk. They suffer from onslaughts of countless seizures and fail to develop as a typical child.

The cause is hidden deep in their DNA in a gene called WWOX. Mutations of the WWOX gene is the cause of 2 devastating diseases, WOREE (WWOX-related Epileptic Encephalopathy) and SCAR12 (Spinocerebellar Ataxia-12). There are only 58 known cases of WOREE and SCAR12 worldwide. These diseases are stealing the futures of these children. The average lifespan of children with severe cases of WOREE syndrome is only 4 years of age.

But there is Hope. Researchers from around the world have banded together to find a cure. Recent laboratory testing has proven that mice with a WWOX mutation can be cured using a gene therapy treatment. However, funding for the research has been completely exhausted. Due to the extreme rarity of this disease funding is hard to come by and we need caring individuals such as yourself to help the cause.

-AUD $200,000 is required to complete the vital preclinical research and trial and a further,
-AUD $100,000 is required for the preclinical data to be reviewed and documented with the assistance of a third-party organisation to gain regulatory approval to proceed with a clinical trial.

Will you help provide hope for these children and their families by donating to the WWOX foundation?

There is no administrative overhead and each dollar donated goes directly to this life-saving research.


For more information about WWOX diseases and the WWOX Foundation please visit wwox.org

WWOX FOUNDATION LIMITED (ABN: 90639202323) is registered with the Australian Charities and Not-for-profits Commission as a Health Promotion Charity. To ensure 100% of your donation goes towards research, you'll have the choice to cover the fees associated with your transaction before submitting. All donations over $2 are tax-deductible.

我们的捐赠者

GL

Gwenaëlle LE MAGUER

donated

€104.10

De part de Marcel et Françoise Breugnot, pour Emmy et les enfants WWOX

G

Greg

donated

A$1,038.86

For Macy, and my love little girl xx

K

Kathy

In honor of our neighbor boys: Luke and Jack!

F

Fatima

donated

A$24.97

BC

Bev Cooper

Well done Liz, (with a little help from Laura😁) hope the fund raising is sucessful

N

Nathalie

donated

$52.23

Para Lucia

V

vivienne

Good luck with the fund raising Vivienne

BB

Brian Boyle

donated

A$200

P

Pili

donated

€156.02

Mucha fuerza y mucho ánimo!! Especialmente para Sophie!!! y para toda su familia!!

SB

Suresh Bale

donated

A$21.20

S

Anonymous

donated

₹3,000

KS

Karla Sanjines

donated

A$156.20

For all our WWOX warriors, especially little Lucia

S

Sandrine

donated

A$73.13

J

Janine

Donating with love and hope, in support of precious little Sophie and her wonderful, determined, cheerful, and endlessly warm and funny family. We love you all.

SG

Sam Giering

donated

£3.35

Thank you for the beautiful christmas cards

R

Ronilda

donated

A$32

Torço para que os resultados clínicos sejam positivos, e que encontre a cura para cada criança. Beijinhos Pablo Matheus.😘🙏

SR

Sonia Rosa

donated

A$1,558.07

A família do Matheus Rodrigues da Silva , também faz parte desta Grande família WWOX que deseja a cura destes pequenos guerreiros.

JO

Julia Ormanroyd

donated

£10.62

Julia. Thanks for the Xmas decorations and cards

J

Jayne

donated

A$31.59

This is for all those brave children but especially our beautiful Sophie who we all love and adore! She makes our nursery a very special place! We are privileged to care for you Sophie

T

Tina

donated

£20

Supporting all the gorgeous children but especially Sophie, Lots of love Tina & Phil x

D

Damien

R

Rory & Valeria

donated

A$1,038.86

Praying the goal will be reached and a cure will be found. Please keep up the amazing work

C

Chris

donated

£10.62

Well done Liz on creating the reindeers for a great cause

DP

Diane Pratt

donated

$1,038.73

Praying for a cure for our super hero grandsons, Luke and Jack.

S

Stephen

For the Pratt boys. Thank you WWOX foundation for the wonderful work!

C

Charlotte

donated

£10.62

A

Anna

donated

£52.16

Such incredible work. This is for Lara and Maddie xxxx

HD

Hilary Dunkerton

donated

A$31.59

VB

Vicky Baker

donated

£15.82

Thank you for our lovely reindeer Liz x

S

Sue

donated

£26.20

With special good wishes to Harry and George and lots of love to all the family. Sue B x