Help Fund the Cure for WWOX
A$242,017.67
已募集
864
捐款
A$300,000
目标
Children across the world are struggling. Each day they struggle to breathe, to see, to eat, to sleep, to walk and to talk. They suffer from onslaughts of countless seizures and fail to develop as a typical child.
The cause is hidden deep in their DNA in a gene called WWOX. Mutations of the WWOX gene is the cause of 2 devastating diseases, WOREE (WWOX-related Epileptic Encephalopathy) and SCAR12 (Spinocerebellar Ataxia-12). There are only 58 known cases of WOREE and SCAR12 worldwide. These diseases are stealing the futures of these children. The average lifespan of children with severe cases of WOREE syndrome is only 4 years of age.
But there is Hope. Researchers from around the world have banded together to find a cure. Recent laboratory testing has proven that mice with a WWOX mutation can be cured using a gene therapy treatment. However, funding for the research has been completely exhausted. Due to the extreme rarity of this disease funding is hard to come by and we need caring individuals such as yourself to help the cause.
-AUD $200,000 is required to complete the vital preclinical research and trial and a further,
-AUD $100,000 is required for the preclinical data to be reviewed and documented with the assistance of a third-party organisation to gain regulatory approval to proceed with a clinical trial.
Will you help provide hope for these children and their families by donating to the WWOX foundation?
There is no administrative overhead and each dollar donated goes directly to this life-saving research.
For more information about WWOX diseases and the WWOX Foundation please visit wwox.org
我们的捐赠者
G
Graziella
donated
€104.41
compleanno Francrsca Vignola
IR
Izaiah Rizzo
donated
$104.15
This is from Izaiah Rizzo in California also a WWOX Warrior
LM
Mima'm
donated
€50
Mima'm por Zoe
P
Paco y Elena
donated
€52.20
Pablo y Ainhoa, sois unos padrazos!!! Zoe tiene suerte de teneros...
M
María Jesus
donated
€5.46
Zoe! Es poquito el dinero que puedo...pero se va a conseguir!
AZ
Abuelita Zoe
donated
€60
Para zoe de anna tere y edu
G
Association "Les rêves d'Emmy"
donated
€280.63
A
Ana
OC
OMS CHAUMONT
donated
€800
L'Office Municipal des Sports de Chaumont a le plaisir de verser la somme de 800 € récoltés à l'occasion de l'action "Chaumont bouge pour eux" du 1er mai 2021. Lors de cet évènement virtuel, plus de 150 personnes ont bougé solidairement pour la petite Lexane (@dans les Yeux de Lexane) et tous les enfants atteints du syndrome de WOREE. Nous espérons que notre modeste contribution permettra de donner de l'espoir à tous ces enfants.
IR
Irene Roman Gonzalez
donated
€2,800
Todos con Zoe!
L
Mima'm
donated
€10.64
JM
Jessica Molloy Speech Pathology
donated
A$104.25
In memory of gorgeous Macy.
A
Alyce
donated
A$185
P
Papás Zoe
donated
€230
De parte de Grupo Solidarios para Zoe
KH
Webb & Brown-Neaves
In Memory of beautiful Macy. From all Staff and Management at Webb & Brown-Neaves
F
Fiona
In memory of beautiful Macy - Australia
EH
Evelin Hurtado vicente
donated
€21.03
Para la pequeña zoe
NS
Nicholas Spiteri
donated
€311.79
Helping to find a cure for these warriors.
CR
Cristiane e Deni Rodrigues da Silva
donated
R$3,116.96
Doação dos Papais do Matheus, amigos e familiares do Matheus Rodrigues da Silva, dinheiro foi arrecadado através das campanhas realizadas. Desejamos a cura dos nossos guerreiros wwox.
ER
Elizabeth Roberts
donated
£335
On behalf of the Horton Mill Court Residents Droitwich UK. Helping Harry, George and the rest of the warriors!
KS
Maecenata Stiftung
donated
A$13,644.56
Donations from Germany for funding the cure of WWOX diseases!
PV
Papás Zoe Valiente
donated
€120
De parte de Mapi y familia para Zoe y los guerreros WWOX
CB
Catalina Barraza
donated
$228.76
Departe de los primitos de Matías
ER
Elizabeth Roberts
donated
£50
On behalf of Joan and John Robinson for Harry and George x
KS
Chalk Up
donated
A$460
For all the WWOX warriors!
KS
Colegio La Encarnación de Villena
donated
A$7,699.14
Donación a todos los niños WWOX en honor a nuestra guerrera Zoe, por parte de la Asociación de padres de alumnos del colegio "La Encarnación de Villena".
KS
Karla Sanjines
donated
A$75
Donation from Licet and Maria Ines in honour of Lucia to help fund the cure for all the WWOX kids.
CL
Charlotte Lloyd
donated
£201.91
In memory of Frank Burgin (Sophie Lloyd's family)
CH
Carolina Huggare
donated
$830.01
Eddie goes to school/ Dudu vai a escola To celebrate 100 books sold, the total sales price is being donated. Love, Carolina
CH
Carolina Huggare
donated
$830.01
Eddie goes to school/ Dudu vai a escola To celebrate 100 books sold, the total sales price is being donated to WWOX foundation. Love Carolina