Help Fund the Cure for WWOX
A$242.392,42
Raccolto
867
Donazioni
A$300.000
Obiettivo
Children across the world are struggling. Each day they struggle to breathe, to see, to eat, to sleep, to walk and to talk. They suffer from onslaughts of countless seizures and fail to develop as a typical child.
The cause is hidden deep in their DNA in a gene called WWOX. Mutations of the WWOX gene is the cause of 2 devastating diseases, WOREE (WWOX-related Epileptic Encephalopathy) and SCAR12 (Spinocerebellar Ataxia-12). There are only 58 known cases of WOREE and SCAR12 worldwide. These diseases are stealing the futures of these children. The average lifespan of children with severe cases of WOREE syndrome is only 4 years of age.
But there is Hope. Researchers from around the world have banded together to find a cure. Recent laboratory testing has proven that mice with a WWOX mutation can be cured using a gene therapy treatment. However, funding for the research has been completely exhausted. Due to the extreme rarity of this disease funding is hard to come by and we need caring individuals such as yourself to help the cause.
-AUD $200,000 is required to complete the vital preclinical research and trial and a further,
-AUD $100,000 is required for the preclinical data to be reviewed and documented with the assistance of a third-party organisation to gain regulatory approval to proceed with a clinical trial.
Will you help provide hope for these children and their families by donating to the WWOX foundation?
There is no administrative overhead and each dollar donated goes directly to this life-saving research.
For more information about WWOX diseases and the WWOX Foundation please visit wwox.org
I nostri donatori
RP
Anonymous
donazione effettuata
$5.192,42
For Luke, Jack and all WWOX warriors
DK
Dale Kettern
donazione effettuata
€41,79
ET
Emily Tully
donazione effettuata
£25
Donating on behalf of Elizabeth Roberts fundraising for Harry and George.
RM
Raquel Munera
donazione effettuata
€41,79
Para la pequeña Zoe con mucho cariño!! Eres una súper guerrera y junto a tus papis vais a conseguir lo que tanto deseáis! Formáis un súper equipazo juntos!! Un abrazo gigante FAMILIA!!
P
Anonymous
Desde Caudete
TH
Tere Hernández Mora
donazione effettuata
A$30
R
Rebekah
donazione effettuata
$104,15
Thank you for helping find a way for resolutions.
NE
Nadine Estrella
donazione effettuata
£10
X
XAVIER
De Xavi, Victoria y Paula para Zoe. De Crevillent para Villena. WE FIGHT TOGETHER!
AB
Aránzazu Bravo
donazione effettuata
€21,03
Fuerza Zoe! Familia Díaz Bravo
FV
Familia Gisbert-Garcia Villeneros
donazione effettuata
€52,18
De la familia villenera Gisbert-Garcia. Mucho ánimo campeones! Alberto y Ana le mandan un besito a Zoe.
C
Carmen
donazione effettuata
€52,18
Mucha fuerza para Zoe y su familia. Ojalá se consiga 🙏❤️💪 Gustavo y Carmen.
PT
Patricia Tortosa
donazione effettuata
€50
Todo nuestro apoyo a Zoe y su familia
AV
Ana Graciela Vega
donazione effettuata
€19,99
Ánimo familia
AF
Alberto Ferriz-Valero
donazione effettuata
€19
Mucha suerte en la investigación, ojalá recibáis la ayuda necesaria.
MC
Mari Colomar
donazione effettuata
€40
De las hermanas Colomar, ánimo Zoe!!!
M
Mavi
P
Pepi
Mucho ánimo en vuestra lucha. Un abrazo para Zoe y su familia
A
ANDREA
Muchísimo ánimo a todos los niños y papas de la asociación, en especial a Zoe. Vamos campeones!!! Alvaro y Andrea
AI
Anonymous
donazione effettuata
€50
PM
Paco Torres Mavi vidal
donazione effettuata
€52,18
F
Familia
J
Javi
donazione effettuata
€52,18
S
Anonymous
V
Vicente
donazione effettuata
€104,10
Animo a Zoe y a sus papas
ME
Anonymous
donazione effettuata
€110
Familia Espinosa-Flor-Hernandez
D
Desiree martínez psicologia infante-juvenil
AS
Alejandro Salguero
donazione effettuata
€100
Mucho ánimo y fuerza para Zoe!
MG
María García
donazione effettuata
€20
Para Zoe. Mucha fuerza.
C
Cristian
donazione effettuata
€104,10
De parte de la familia villenera Fraile Martí, mucho ánimo y mucha fuerza para Zoe