Help Fund the Cure for WWOX

A$242.392,42

Raccolto

Donazioni

A$300.000

Obiettivo


Children across the world are struggling. Each day they struggle to breathe, to see, to eat, to sleep, to walk and to talk. They suffer from onslaughts of countless seizures and fail to develop as a typical child.

The cause is hidden deep in their DNA in a gene called WWOX. Mutations of the WWOX gene is the cause of 2 devastating diseases, WOREE (WWOX-related Epileptic Encephalopathy) and SCAR12 (Spinocerebellar Ataxia-12). There are only 58 known cases of WOREE and SCAR12 worldwide. These diseases are stealing the futures of these children. The average lifespan of children with severe cases of WOREE syndrome is only 4 years of age.

But there is Hope. Researchers from around the world have banded together to find a cure. Recent laboratory testing has proven that mice with a WWOX mutation can be cured using a gene therapy treatment. However, funding for the research has been completely exhausted. Due to the extreme rarity of this disease funding is hard to come by and we need caring individuals such as yourself to help the cause.

-AUD $200,000 is required to complete the vital preclinical research and trial and a further,
-AUD $100,000 is required for the preclinical data to be reviewed and documented with the assistance of a third-party organisation to gain regulatory approval to proceed with a clinical trial.

Will you help provide hope for these children and their families by donating to the WWOX foundation?

There is no administrative overhead and each dollar donated goes directly to this life-saving research.


For more information about WWOX diseases and the WWOX Foundation please visit wwox.org


WWOX FOUNDATION LIMITED (ABN: 90639202323) is registered with the Australian Charities and Not-for-profits Commission as a Health Promotion Charity. To ensure 100% of your donation goes towards research, you'll have the choice to cover the fees associated with your transaction before submitting. All donations over $2 are tax-deductible.

I nostri donatori

MM

Anonymous

To little Matias and all those little warriors! 🙏🏼💞

MS

Michelle Serrano

donazione effettuata

A$31,57

For Handsome little Matias and all the beautiful babies out there

CY

Cheryl Yamasaki

donazione effettuata

$104,15

For Matias and the other WWOX children!

P

Papás Zoe

donazione effettuata

€1.000

LH

Liz Hitchcock

donazione effettuata

£21

On behalf of two wonderfully kind children- Ewan and Niamh Casey - who asked for a donation on their behalf instead of a Christmas

ER

Elizabeth Roberts

donazione effettuata

£614

Final instalment of money from raffle, reindeer and Christmas cards!

ER

Ed and Renee

donazione effettuata

A$645

"Partnering with you to support the great work of the WWOX Foundation" Ed and Renee

LC

Laura Catterall

donazione effettuata

£25

I have been delighted to help support this foundation! It's very close to my heart so I hope you raise enough Money to help everyone who is affected by it. Laura Catterall X

D

Deborah

donazione effettuata

£12

Beautiful Christmas decorations and gift tags xx donated for Liz Roberts and her family . Fingers crossed now for the raffle

M

Mel

donazione effettuata

€150

Pour Mathéo, Robin et tous leurs copains, de la part de tonton Fred et de tata Mel

SM

Sue Mechan

donazione effettuata

£10,62

This is for all the WWOX Warriors especially Harry & George Roberts who are two beautiful boys. 💙💙

S

Sally

donazione effettuata

£8,03

GH

Gerry Humphries

donazione effettuata

£30

On behalf of Gerry Humphries - for Harry, George and all the WWOX warriors

MM

Marius Maringer

donazione effettuata

A$13.225,47

Fighting together with my wwox companions!

SP

Anonymous

donazione effettuata

A$13.233,81

For Luke and Jack and all the WWOX Warriors!

PD

Parisa David

donazione effettuata

£5,43

TF

Tanja Fricke

donazione effettuata

A$243

For a cure for all our WWOX warriors!

J

Jane and Matt

donazione effettuata

£5,43

R

Rob

donazione effettuata

A$73,12

For little Macy.

AL

Association Les reves d emmy

donazione effettuata

€1.000

De la part de l association les enfants de trestel

M

Mt. Hawthorn

donazione effettuata

A$55

R

Renee

donazione effettuata

A$31,58

B

Brooke

donazione effettuata

A$52,35

I just saw your story on Yelo's instagram. Sending positive vibes your way little Macy xx

J

Jono

donazione effettuata

A$104,27

You guys are incredible! Much love to Macy, Tim and Sammy from Jono, Ainz and Elle.

JT

James Teakle

donazione effettuata

A$104,27

No words. You three are incredible.

OM

Oli.

donazione effettuata

A$52,35

ER

Elizabeth Roberts

donazione effettuata

£100

On behalf of Severn Court Residents Association Droitwich UK- thank you all!

KR

Kelly & Duke Rauh

donazione effettuata

$1.000

for Luke & Jack

S

Shelley

donazione effettuata

A$31,58

For little Macy Fitzgerald xx

JQ

Jace & Monique Quarrill

donazione effettuata

A$52,35

For Macy xx