Help Fund the Cure for WWOX

A$242.392,42

Raccolto

Donazioni

A$300.000

Obiettivo


Children across the world are struggling. Each day they struggle to breathe, to see, to eat, to sleep, to walk and to talk. They suffer from onslaughts of countless seizures and fail to develop as a typical child.

The cause is hidden deep in their DNA in a gene called WWOX. Mutations of the WWOX gene is the cause of 2 devastating diseases, WOREE (WWOX-related Epileptic Encephalopathy) and SCAR12 (Spinocerebellar Ataxia-12). There are only 58 known cases of WOREE and SCAR12 worldwide. These diseases are stealing the futures of these children. The average lifespan of children with severe cases of WOREE syndrome is only 4 years of age.

But there is Hope. Researchers from around the world have banded together to find a cure. Recent laboratory testing has proven that mice with a WWOX mutation can be cured using a gene therapy treatment. However, funding for the research has been completely exhausted. Due to the extreme rarity of this disease funding is hard to come by and we need caring individuals such as yourself to help the cause.

-AUD $200,000 is required to complete the vital preclinical research and trial and a further,
-AUD $100,000 is required for the preclinical data to be reviewed and documented with the assistance of a third-party organisation to gain regulatory approval to proceed with a clinical trial.

Will you help provide hope for these children and their families by donating to the WWOX foundation?

There is no administrative overhead and each dollar donated goes directly to this life-saving research.


For more information about WWOX diseases and the WWOX Foundation please visit wwox.org


WWOX FOUNDATION LIMITED (ABN: 90639202323) is registered with the Australian Charities and Not-for-profits Commission as a Health Promotion Charity. To ensure 100% of your donation goes towards research, you'll have the choice to cover the fees associated with your transaction before submitting. All donations over $2 are tax-deductible.

I nostri donatori

P

Patricia

donazione effettuata

A$73,12

CT

Christine Twyford

donazione effettuata

£104,08

For Harry, you light up my mornings with your winning smile little man. A very special part of my day.

D

Anonymous

donazione effettuata

$5.192,42

KP

Karen Pratt

donazione effettuata

$51

Second donation on behalf of Luke and Jack’s abuelito Rodolfo

A

Alex

donazione effettuata

£5,43

HN

Herisha Naidoo

donazione effettuata

R2.000

For my darling Neyamiah,sending you lots of love 🌺God bless you my angel 😇

EV

Emma Veen

donazione effettuata

A$52,35

For Sammy, Tim & little Macy xxx

RD

Rod Druce

donazione effettuata

A$104,27

Hi Sammy & Macy I hope this helps, all our love, Rod & Lee-Anne

P

Peter

donazione effettuata

A$208,11

For Sammy and Macy from PC

N

Webb & Brown-Neaves

donazione effettuata

A$21,19

For beautiful Macy

GD

Guy Damiano

donazione effettuata

A$104,27

for Sammy, Macy & Tim

MD

Michael Dos Santos

donazione effettuata

A$52,36

For Macy, Sammy and Tim

NB

Niall Blaney

donazione effettuata

A$31,59

NS

Natalie Sawford

donazione effettuata

A$31,59

J

Jaspreet

DC

Danielle Chauveau

donazione effettuata

A$21,20

H

Harjit

donazione effettuata

£10,62

Amazing work for a great cause!! The Christmas decorations are beautiful Laura. Lots of love, Harjit xx

ER

Elizabeth Roberts

donazione effettuata

£300

Second instalment of money raised from selling reindeer decorations

LB

Lauren Birkhead

donazione effettuata

A$30

G

Georgie

For Macy, good luck Sammy & Tim

SL

Shannon Lloyd

donazione effettuata

A$31,59

For Sammy, Tim & Macy. Lots of love xx

VD

Vanessa Di Cicco

donazione effettuata

A$31,59

Wishing Sammy, Tim and Macy all the best, x.

PJ

Phil Johnson

donazione effettuata

A$52,37

for Sammy , Tim and Macy xx

ER

Elizabeth Roberts

donazione effettuata

£200

Money raised from the Temple Spa evening 🥰

R

Refiloe

donazione effettuata

R628,15

Miah...My warrior Queen-Just like her mother

NM

Nick Monzu

donazione effettuata

A$208,12

For Macy, Sammy and Tim

K

Karen

donazione effettuata

$52,23

On behalf Abuelito Rodolfo, for his grand babies Luke and Jack

DA

Alcock Family Foundation

donazione effettuata

A$1.038,86

SR

Suzie Richards

R

Rick

donazione effettuata

A$21,20