Help Fund the Cure for WWOX
A$238.690,84
Recaudado
838
Donaciones
A$300.000
Objetivo
Children across the world are struggling. Each day they struggle to breathe, to see, to eat, to sleep, to walk and to talk. They suffer from onslaughts of countless seizures and fail to develop as a typical child.
The cause is hidden deep in their DNA in a gene called WWOX. Mutations of the WWOX gene is the cause of 2 devastating diseases, WOREE (WWOX-related Epileptic Encephalopathy) and SCAR12 (Spinocerebellar Ataxia-12). There are only 58 known cases of WOREE and SCAR12 worldwide. These diseases are stealing the futures of these children. The average lifespan of children with severe cases of WOREE syndrome is only 4 years of age.
But there is Hope. Researchers from around the world have banded together to find a cure. Recent laboratory testing has proven that mice with a WWOX mutation can be cured using a gene therapy treatment. However, funding for the research has been completely exhausted. Due to the extreme rarity of this disease funding is hard to come by and we need caring individuals such as yourself to help the cause.
-AUD $200,000 is required to complete the vital preclinical research and trial and a further,
-AUD $100,000 is required for the preclinical data to be reviewed and documented with the assistance of a third-party organisation to gain regulatory approval to proceed with a clinical trial.
Will you help provide hope for these children and their families by donating to the WWOX foundation?
There is no administrative overhead and each dollar donated goes directly to this life-saving research.
For more information about WWOX diseases and the WWOX Foundation please visit wwox.org
Muro de Donantes324
Karen | $289,95
From the Lynch Creek Farms Christmas Wreaths Campaign
José Lilla | R$520,88
Carol Lilla’s birthday party
Talita | R$301,78
Estefanía Boaglio | €46,99
Fuerza y perseverancia!!! Ánimo Zoe y a toda la familia!
Agustín | €311,79
Para tod@s l@s guerrer@s, especialmente para Zoe. Con mucho cariño de la familia Navarro Olcina
Elizabeth Roberts | £300
Kindly raised by Alexandra hospital Physiotherapy department bake sale
Association | €1.000
Merci aux nombreux donateurs pour Emmy et les enfants
Carolina Lilla | $2.077,15
Carol Lilla’s birthday party
Felix & Aubrey España | $62,62
Stephen Pratt.....your polar bear plunge was awesome!
Anonymous | $52,23
From Marian Holm for Luke & Jack
Mary Grunewald
Anonymous | A$104,25
Mucho ánimo! Toda la suerte del mundo! Va ir todo bien. Irene
Maecenata Stiftung | A$37.719,50
Donations from Germany for funding the cure of WWOX diseases!
Raquel Martínez Escuder | €52,17
Para que estos niños tengan la mejor vida posible. De parte de José María, Hernán y Raquel. Biar (Alicante)
Francisco Javier Molina | €20
Para Zoe, de parte de Molina y Cristina, amigos de la familia, queremos aportar nuestro pequeño granito de arena!
Eva Domene
Blanca | €52,17
Para que cada granito de arena ayude en la lucha de estos niños valientes y en especial para la guerrera Zoe
Anonymous
Juan López | €5
Zoe ❤
Hormel Foods Corporation | A$52,33
Pilar Sanchez | €156,01
De Pilar (Madre Tamy) y Matías para Zoe. Mucha fuerza
Abuelita zoe | €100
Con cariño para zoe
Loli Gonzalez | €52,17
De Loli (Denia) para nuestra Zoe.
Tia Maria Tia Nina | R$209,30
Das Tias Nina e Maria para o Matheus, força Deni e Cris muita fé que todas as crianças deram curadas.
Deni Rodrigues da Silva | R$1.040,04
Dinheiro arrecadado da Rifa de Natal feita na clínica de fonoterapia (FonoSim) do Matheus Rodrigues da Silva e venda das reciclagens. Para todas as crianças wwox, amamos a todos.
Antonia Maestre Hernández | €104,10
Para Zoe, de una amiga común de tus abuelas.
Juan Miguel Camús Martínez | €550
Para Zoe, de sus tíos de Madrid
Eric | €1.038,67
For Gabrielle and all of our childrens
Elizabeth Roberts | £36
Money raised from Jackie at Alex physio dept selling crafts plus more Christmas crafts.
Antonio Espinosa
De parte de Espinosa y María Luisa.Mucha fuerza y ánimo 💪👨👩👧