Help Fund the Cure for WWOX
A$238.690,84
Recaudado
838
Donaciones
A$300.000
Objetivo
Children across the world are struggling. Each day they struggle to breathe, to see, to eat, to sleep, to walk and to talk. They suffer from onslaughts of countless seizures and fail to develop as a typical child.
The cause is hidden deep in their DNA in a gene called WWOX. Mutations of the WWOX gene is the cause of 2 devastating diseases, WOREE (WWOX-related Epileptic Encephalopathy) and SCAR12 (Spinocerebellar Ataxia-12). There are only 58 known cases of WOREE and SCAR12 worldwide. These diseases are stealing the futures of these children. The average lifespan of children with severe cases of WOREE syndrome is only 4 years of age.
But there is Hope. Researchers from around the world have banded together to find a cure. Recent laboratory testing has proven that mice with a WWOX mutation can be cured using a gene therapy treatment. However, funding for the research has been completely exhausted. Due to the extreme rarity of this disease funding is hard to come by and we need caring individuals such as yourself to help the cause.
-AUD $200,000 is required to complete the vital preclinical research and trial and a further,
-AUD $100,000 is required for the preclinical data to be reviewed and documented with the assistance of a third-party organisation to gain regulatory approval to proceed with a clinical trial.
Will you help provide hope for these children and their families by donating to the WWOX foundation?
There is no administrative overhead and each dollar donated goes directly to this life-saving research.
For more information about WWOX diseases and the WWOX Foundation please visit wwox.org
Muro de Donantes324
Papás Zoe | €1.200
Donación benéfica del C.F. Fair Play Villena para Zoe y todos los guerreros WWOX
Papás Zoe | €40
De parte de José Ortín y Ana Mora, una familia villenera. Muchas gracias
Macarena | €50
Sandra Hernández | €45,95
Abuelita zoe | €311,79
Para mi princesa de su abuelita
Papás Zoe | €100
De parte de la familia Abellán García. Muchas gracias
Papás Zoe | €100
De parte de Ana Celi, para la más valiente de mi familia haciendo mención al apellido VALIENTE.
Brad | $200
Merry Christmas Luke and Jack Pratt! Uncle Brad and the girls
FLORIAN ABELLÁN AMOROS | €415,63
Para Zoe con mucho amor
Anonymous | $5.192,42
Merry Christmas Jack & Luke!
Nana
In honour of Kynlei Shanafelt!!
Lori Kesl
Merry Christmas Kynlie S.!
Chelsea
Merry Christmas Kyn!
Courtney Moodry | $26,27
Papás Zoe Valiente | €50
De parte de Julia, mucha fuerza y toda mi buena energía. Gracias
Antonio | €50
Golia non ha scampo! I piccoli sono sempre più forti dei grandi... ADR
John Riddiough | £207,91
On behalf of Sophie and Joe
Gianna Rando | €50
per Davide e per tutti i piccoli guerrieri.
Jeroen Bomhof | A$52,34
Ralph
Because we love the Pratt family
Melanie Miranda | €20
Todo es posible. Mucho ánimo.
Jeanne Hultgrenn | A$73,10
In honor of Stphen, Karen, Luke, Jack and Russell Prat
Papás Zoe | €200
De parte de Mari Paz, Óscar y su familia para Zoe. Muchas gracias
Mateo Hernández Rubio | €10,64
Para ese apoyo que tanta falta os hace
Inma Cuenca | A$831,15
Fuerza desde Alicante para la pequeña guerrera Zoe de parte de Itziar, Juanmi e Inma
Cristiane Silva | R$1.040,01
Com muito carinho para o Matheus Rodrigues e todas essas crianças lindas e guerreiras que a cura para a mutação wwox aconteça o mais breve possível.
Deni Silva | R$1.040,01
Para todos os guerreiros WWOX e principalmente para o Matheus Rodrigues🇧🇷 Que todos estejam curados o mais breve possível.
Andrea
Todo va a salir bien. Os mandamos mucha fuerza desde Alicante
Barb | A$208,09
Anonymous | $5.192,42
For Luke, Jack and all WWOX warriors