Help Fund the Cure for WWOX
A$238.690,84
Recaudado
838
Donaciones
A$300.000
Objetivo
Children across the world are struggling. Each day they struggle to breathe, to see, to eat, to sleep, to walk and to talk. They suffer from onslaughts of countless seizures and fail to develop as a typical child.
The cause is hidden deep in their DNA in a gene called WWOX. Mutations of the WWOX gene is the cause of 2 devastating diseases, WOREE (WWOX-related Epileptic Encephalopathy) and SCAR12 (Spinocerebellar Ataxia-12). There are only 58 known cases of WOREE and SCAR12 worldwide. These diseases are stealing the futures of these children. The average lifespan of children with severe cases of WOREE syndrome is only 4 years of age.
But there is Hope. Researchers from around the world have banded together to find a cure. Recent laboratory testing has proven that mice with a WWOX mutation can be cured using a gene therapy treatment. However, funding for the research has been completely exhausted. Due to the extreme rarity of this disease funding is hard to come by and we need caring individuals such as yourself to help the cause.
-AUD $200,000 is required to complete the vital preclinical research and trial and a further,
-AUD $100,000 is required for the preclinical data to be reviewed and documented with the assistance of a third-party organisation to gain regulatory approval to proceed with a clinical trial.
Will you help provide hope for these children and their families by donating to the WWOX foundation?
There is no administrative overhead and each dollar donated goes directly to this life-saving research.
For more information about WWOX diseases and the WWOX Foundation please visit wwox.org
Muro de Donantes324
Dale Kettern | €41,79
Emily Tully | £25
Donating on behalf of Elizabeth Roberts fundraising for Harry and George.
Raquel Munera | €41,79
Para la pequeña Zoe con mucho cariño!! Eres una súper guerrera y junto a tus papis vais a conseguir lo que tanto deseáis! Formáis un súper equipazo juntos!! Un abrazo gigante FAMILIA!!
Anonymous
Desde Caudete
Tere Hernández Mora | A$30
Rebekah | $104,15
Thank you for helping find a way for resolutions.
Nadine Estrella | £10
XAVIER
De Xavi, Victoria y Paula para Zoe. De Crevillent para Villena. WE FIGHT TOGETHER!
Aránzazu Bravo | €21,03
Fuerza Zoe! Familia Díaz Bravo
Familia Gisbert-Garcia Villeneros | €52,18
De la familia villenera Gisbert-Garcia. Mucho ánimo campeones! Alberto y Ana le mandan un besito a Zoe.
Carmen | €52,18
Mucha fuerza para Zoe y su familia. Ojalá se consiga 🙏❤️💪 Gustavo y Carmen.
Patricia Tortosa | €50
Todo nuestro apoyo a Zoe y su familia
Ana Graciela Vega | €19,99
Ánimo familia
Alberto Ferriz-Valero | €19
Mucha suerte en la investigación, ojalá recibáis la ayuda necesaria.
Mari Colomar | €40
De las hermanas Colomar, ánimo Zoe!!!
Mavi
Pepi
Mucho ánimo en vuestra lucha. Un abrazo para Zoe y su familia
ANDREA
Muchísimo ánimo a todos los niños y papas de la asociación, en especial a Zoe. Vamos campeones!!! Alvaro y Andrea
Anonymous | €50
Paco Torres Mavi vidal | €52,18
Familia
Javi | €52,18
Anonymous
Vicente | €104,10
Animo a Zoe y a sus papas
Anonymous | €110
Familia Espinosa-Flor-Hernandez
Desiree martínez psicologia infante-juvenil
Alejandro Salguero | €100
Mucho ánimo y fuerza para Zoe!
María García | €20
Para Zoe. Mucha fuerza.
Cristian | €104,10
De parte de la familia villenera Fraile Martí, mucho ánimo y mucha fuerza para Zoe
Yolanda | €19,99
Ánimo Zoe. Eres una guerrera.