Help Fund the Cure for WWOX
A$238.690,84
Recaudado
838
Donaciones
A$300.000
Objetivo
Children across the world are struggling. Each day they struggle to breathe, to see, to eat, to sleep, to walk and to talk. They suffer from onslaughts of countless seizures and fail to develop as a typical child.
The cause is hidden deep in their DNA in a gene called WWOX. Mutations of the WWOX gene is the cause of 2 devastating diseases, WOREE (WWOX-related Epileptic Encephalopathy) and SCAR12 (Spinocerebellar Ataxia-12). There are only 58 known cases of WOREE and SCAR12 worldwide. These diseases are stealing the futures of these children. The average lifespan of children with severe cases of WOREE syndrome is only 4 years of age.
But there is Hope. Researchers from around the world have banded together to find a cure. Recent laboratory testing has proven that mice with a WWOX mutation can be cured using a gene therapy treatment. However, funding for the research has been completely exhausted. Due to the extreme rarity of this disease funding is hard to come by and we need caring individuals such as yourself to help the cause.
-AUD $200,000 is required to complete the vital preclinical research and trial and a further,
-AUD $100,000 is required for the preclinical data to be reviewed and documented with the assistance of a third-party organisation to gain regulatory approval to proceed with a clinical trial.
Will you help provide hope for these children and their families by donating to the WWOX foundation?
There is no administrative overhead and each dollar donated goes directly to this life-saving research.
For more information about WWOX diseases and the WWOX Foundation please visit wwox.org
Muro de Donantes324
Andrea Marco | €45,95
Anonymous | €104,10
Ánimo para esa niña
Elia
Vicente Catalan | €26,22
Francisco Miguel Ortuño Martínez | €10
Pablo y Ainhoa,mucho ánimo y fuerza desde Villena. 💪
Karkomas | €500
De los pequeños Karkomas! Aportamos nuestro granito de arena 😘
Clara N M
Con todo nuestro cariño nos unimos a vuestra lucha, por todos ellos y en especial por Zoe y sus papás.
Rosabel | €50
Anonymous | €100
Desde Villena.... Mucha fuerza...
Alicia-Rafa
Anonymous | €21,18
Ánimo y mucha fuerza para seguir luchando!!
María | €31,41
Desde Villena estamos con vosotros, fuerza y ánimo para esa campeona y para todos los niños tan especiales como ella.
Roque Ferri | A$31,57
Zoe esperamos que la esperanza en esta lucha se convierta en realidad.
Aránzazu Gómez | €31,41
Ánimo en la lucha en especial para Zoe y sus Papás
Diego Senent | €5
Maria | €207,94
Con todo el cariño para Zoe y sus papás. Mucha fuerza, lo vais a conseguir!💪🏼 Alberto y Maria
Magda Marcos | €31,41
Anonymous | €52,18
Antonio
Mucho ánimo
Flor | €25
Mucha fuerza para Pablo y Ainhoa !! Con cariño para Zoe y para tod@s l@s niñ@s que lo necesitan !!
Cristina | A$41,95
Para Zoe de una familia villenera
Carlos S | €100
Desde Murcia con amor para Zoe
Samanta | €62,56
De parte de Ian y su mamá, para su amiguita Zoe y los demas nenes de la asociación. Lo vais a conseguir!!! 💪💪
Antonio | €104,10
De parte de Elena, Sara y Antonio, para todos estos niños y en especial para Zoe.
José María | €342,94
De parte de la familia Sánchez Castillo para todos estos angelit@s y en especial a Zoe que es un sol.
José María | A$1.038,84
Para Zoe con todo nuestro cariño y sus nuevos amigos de la fundación.
Marina | €50
Para nuestra Zoe. Marina Román.
Estefanía García | €20
Para mi primita Zoe
Teresa Martinez | €200
Anonymous
To little Matias and all those little warriors! 🙏🏼💞