Help Fund the Cure for WWOX
A$238.690,84
Recaudado
838
Donaciones
A$300.000
Objetivo
Children across the world are struggling. Each day they struggle to breathe, to see, to eat, to sleep, to walk and to talk. They suffer from onslaughts of countless seizures and fail to develop as a typical child.
The cause is hidden deep in their DNA in a gene called WWOX. Mutations of the WWOX gene is the cause of 2 devastating diseases, WOREE (WWOX-related Epileptic Encephalopathy) and SCAR12 (Spinocerebellar Ataxia-12). There are only 58 known cases of WOREE and SCAR12 worldwide. These diseases are stealing the futures of these children. The average lifespan of children with severe cases of WOREE syndrome is only 4 years of age.
But there is Hope. Researchers from around the world have banded together to find a cure. Recent laboratory testing has proven that mice with a WWOX mutation can be cured using a gene therapy treatment. However, funding for the research has been completely exhausted. Due to the extreme rarity of this disease funding is hard to come by and we need caring individuals such as yourself to help the cause.
-AUD $200,000 is required to complete the vital preclinical research and trial and a further,
-AUD $100,000 is required for the preclinical data to be reviewed and documented with the assistance of a third-party organisation to gain regulatory approval to proceed with a clinical trial.
Will you help provide hope for these children and their families by donating to the WWOX foundation?
There is no administrative overhead and each dollar donated goes directly to this life-saving research.
For more information about WWOX diseases and the WWOX Foundation please visit wwox.org
Muro de Donantes324
Christine Twyford | £104,08
For Harry, you light up my mornings with your winning smile little man. A very special part of my day.
Anonymous | $5.192,42
Karen Pratt | $51
Second donation on behalf of Luke and Jack’s abuelito Rodolfo
Alex | £5,43
Herisha Naidoo | R2.000
For my darling Neyamiah,sending you lots of love 🌺God bless you my angel 😇
Emma Veen | A$52,35
For Sammy, Tim & little Macy xxx
Rod Druce | A$104,27
Hi Sammy & Macy I hope this helps, all our love, Rod & Lee-Anne
Peter | A$208,11
For Sammy and Macy from PC
Webb & Brown-Neaves | A$21,19
For beautiful Macy
Guy Damiano | A$104,27
for Sammy, Macy & Tim
Michael Dos Santos | A$52,36
For Macy, Sammy and Tim
Niall Blaney | A$31,59
Natalie Sawford | A$31,59
Jaspreet
Danielle Chauveau | A$21,20
Harjit | £10,62
Amazing work for a great cause!! The Christmas decorations are beautiful Laura. Lots of love, Harjit xx
Elizabeth Roberts | £300
Second instalment of money raised from selling reindeer decorations
Lauren Birkhead | A$30
Georgie
For Macy, good luck Sammy & Tim
Shannon Lloyd | A$31,59
For Sammy, Tim & Macy. Lots of love xx
Vanessa Di Cicco | A$31,59
Wishing Sammy, Tim and Macy all the best, x.
Phil Johnson | A$52,37
for Sammy , Tim and Macy xx
Elizabeth Roberts | £200
Money raised from the Temple Spa evening 🥰
Refiloe | R628,15
Miah...My warrior Queen-Just like her mother
Nick Monzu | A$208,12
For Macy, Sammy and Tim
Karen | $52,23
On behalf Abuelito Rodolfo, for his grand babies Luke and Jack
Alcock Family Foundation | A$1.038,86
Suzie Richards
Rick | A$21,20
David Nylander | A$73,13
Thinking of you Tim, Sammy and little Macy