Help Fund the Cure for WWOX
A$238.690,84
Recaudado
838
Donaciones
A$300.000
Objetivo
Children across the world are struggling. Each day they struggle to breathe, to see, to eat, to sleep, to walk and to talk. They suffer from onslaughts of countless seizures and fail to develop as a typical child.
The cause is hidden deep in their DNA in a gene called WWOX. Mutations of the WWOX gene is the cause of 2 devastating diseases, WOREE (WWOX-related Epileptic Encephalopathy) and SCAR12 (Spinocerebellar Ataxia-12). There are only 58 known cases of WOREE and SCAR12 worldwide. These diseases are stealing the futures of these children. The average lifespan of children with severe cases of WOREE syndrome is only 4 years of age.
But there is Hope. Researchers from around the world have banded together to find a cure. Recent laboratory testing has proven that mice with a WWOX mutation can be cured using a gene therapy treatment. However, funding for the research has been completely exhausted. Due to the extreme rarity of this disease funding is hard to come by and we need caring individuals such as yourself to help the cause.
-AUD $200,000 is required to complete the vital preclinical research and trial and a further,
-AUD $100,000 is required for the preclinical data to be reviewed and documented with the assistance of a third-party organisation to gain regulatory approval to proceed with a clinical trial.
Will you help provide hope for these children and their families by donating to the WWOX foundation?
There is no administrative overhead and each dollar donated goes directly to this life-saving research.
For more information about WWOX diseases and the WWOX Foundation please visit wwox.org
Muro de Donantes324
Andy Ringin | A$104.28
Prayers up, Sammy, Macy & family!
Shaminder Sahota | £10
Good luck with the fundraising Shaminder :)
Philip Newbury | A$8.22
Phil newbury reindeer
Elizabeth Roberts | £10
On behalf of Dorothy and David x
Christina Mehinagic | $22
For the Pratt family. Praying for you ❤️
Jose Miguel
God Bless you Lucia
Sarah Rooskrantz | R500
The Favor of God, His Hands of Protection and Healing be upon Neyamiah and all the other 57 children. Guide and Direct the doctors to perform a excellent and Miracle job on our little children in Jesus Name Amen🙏🙏Glory to God 🙌👏
Solange et Jérôme | €311.79
Pour Mathéo, Robin et les autres enfants.
Sunera James | R200
4 all the WWOX Warriors❤️
Association Les rêves d'Emmy | €50
De la part de M. et Mme FUSTEC, pour Emmy, qu'une remède soit réel pour les enfants WWOX
Jason & Nina | A$104.28
For Macy
Stephen | $200
On behalf of Cindy Pugsley and the Sekisui Aerospace Paint Shop in Renton
Elizabeth Roberts | £421
First instalment if money raised from selling reindeer decorations!! Keep fighting everyone!!
Anne | €1,038.68
Pour Gabrielle et tous les autres petits guerriers. We fight together !
Nelma Sanjines | A$500
With love to all the WWOX warriors!
Adrian & Vicki | £150
For 2 amazing boys, Harry & George x
Anonymous | A$31.59
FAMILIA Y AMIGOS DE BOLIVIA | A$1,000
To all WWOX fighters from Lucia's family and friends in BOLIVIA (Beatriz, Brianna , Tatiana y Mildred)
Anonymous
Sonja Voice | $52.23
Sheena and Jason
For our friends’ boys: Luke and Jack 💙
Bé et Nico
Pour Mathéo, Robin et tous les enfants WWOX du monde entier. Pour que la thérapie vous soit profitable au plus vite!
Mathéo & Robin Aune | €207.95
Pour Mathéo, Robin et leurs petits amis autour du globe.
Monique | A$208.12
For beautiful baby Macy 💗
Waypoint Pediatric Therapies
For 2 beautiful boys Luke and Jack and all children with WWOX
Maple and Lark | $52.23
Jeffrey | A$104.28
Association Les rêves d'Emmy | €1,000
De la part de l'association "les enfants de Trestel", pour Emmy et tous les enfatns WWOX
Juana | A$52.36
With love for the brave little baby Macy. Our prayers are with you and all the WWOX warriors for the cure to be found soon.
Gwenaëlle LE MAGUER | €104.10
De part de Marcel et Françoise Breugnot, pour Emmy et les enfants WWOX