Help Fund the Cure for WWOX

A$24,649.52

Raised

Donations

A$300,000

Goal


Children across the world are struggling. Each day they struggle to breathe, to see, to eat, to sleep, to walk and to talk. They suffer from onslaughts of countless seizures and fail to develop as a typical child.

The cause is hidden deep in their DNA in a gene called WWOX. Mutations of the WWOX gene is the cause of 2 devastating diseases, WOREE (WWOX-related Epileptic Encephalopathy) and SCAR12 (Spinocerebellar Ataxia-12). There are only 58 known cases of WOREE and SCAR12 worldwide. These diseases are stealing the futures of these children. The average lifespan of children with severe cases of WOREE syndrome is only 4 years of age.

But there is Hope. Researchers from around the world have banded together to find a cure. Recent laboratory testing has proven that mice with a WWOX mutation can be cured using a gene therapy treatment. However, funding for the research has been completely exhausted. Due to the extreme rarity of this disease funding is hard to come by and we need caring individuals such as yourself to help the cause.

-AUD $200,000 is required to complete the vital preclinical research and trial and a further,
-AUD $100,000 is required for the preclinical data to be reviewed and documented with the assistance of a third-party organisation to gain regulatory approval to proceed with a clinical trial.

Will you help provide hope for these children and their families by donating to the WWOX foundation?

There is no administrative overhead and each dollar donated goes directly to this life-saving research.


For more information about WWOX diseases and the WWOX Foundation please visit wwox.org

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    WWOX FOUNDATION LIMITED (ABN: 90639202323) is registered with the Australian Charities and Not-for-profits Commission as a Health Promotion Charity. To ensure 100% of your donation goes towards research, you'll have the choice to cover the fees associated with your transaction before submitting. All donations over $2 are tax-deductible.

    Donor Wall70

    Nelma Sanjines | A$500

    With love to all the WWOX warriors!

    Adrian & Vicki | £150

    For 2 amazing boys, Harry & George x

    Anonymous | A$31.59

    FAMILIA Y AMIGOS DE BOLIVIA | A$1,000

    To all WWOX fighters from Lucia's family and friends in BOLIVIA (Beatriz, Brianna , Tatiana y Mildred)

    Anonymous

    Sonja Voice | $52.23

    Sheena and Jason

    For our friends’ boys: Luke and Jack 💙

    Bé et Nico

    Pour Mathéo, Robin et tous les enfants WWOX du monde entier. Pour que la thérapie vous soit profitable au plus vite!

    Mathéo & Robin Aune | 207,95 €

    Pour Mathéo, Robin et leurs petits amis autour du globe.

    Monique | A$208.12

    For beautiful baby Macy 💗

    Waypoint Pediatric Therapies

    For 2 beautiful boys Luke and Jack and all children with WWOX

    Maple and Lark | $52.23

    Jeffrey | A$104.28

    Association Les rêves d emmy | 1.000 €

    De la part de l'association "les enfants de Trestel", pour Emmy et tous les enfatns WWOX

    Juana | A$52.36

    With love for the brave little baby Macy. Our prayers are with you and all the WWOX warriors for the cure to be found soon.

    Gwenaëlle LE MAGUER | 104,10 €

    De part de Marcel et Françoise Breugnot, pour Emmy et les enfants WWOX

    Greg | A$1,038.86

    For Macy, and my love little girl xx

    Kathy

    In honor of our neighbor boys: Luke and Jack!

    Fatima | A$24.97

    Bev Cooper

    Well done Liz, (with a little help from Laura😁) hope the fund raising is sucessful

    Nathalie | $52.23

    Para Lucia

    vivienne

    Good luck with the fund raising Vivienne

    Brian Boyle | A$200

    Pili | 156,02 €

    Mucha fuerza y mucho ánimo!! Especialmente para Sophie!!! y para toda su familia!!

    Suresh Bale | A$21.20

    Anonymous | ₹3,000

    Karla Sanjines | A$156.20

    For all our WWOX warriors, especially little Lucia

    Sandrine | A$73.13

    Janine

    Donating with love and hope, in support of precious little Sophie and her wonderful, determined, cheerful, and endlessly warm and funny family. We love you all.

    Sam Giering | £3.35

    Thank you for the beautiful christmas cards