Help Fund the Cure for WWOX

A$172,249.59

Raised

Donations

A$300,000

Goal


Children across the world are struggling. Each day they struggle to breathe, to see, to eat, to sleep, to walk and to talk. They suffer from onslaughts of countless seizures and fail to develop as a typical child.

The cause is hidden deep in their DNA in a gene called WWOX. Mutations of the WWOX gene is the cause of 2 devastating diseases, WOREE (WWOX-related Epileptic Encephalopathy) and SCAR12 (Spinocerebellar Ataxia-12). There are only 58 known cases of WOREE and SCAR12 worldwide. These diseases are stealing the futures of these children. The average lifespan of children with severe cases of WOREE syndrome is only 4 years of age.

But there is Hope. Researchers from around the world have banded together to find a cure. Recent laboratory testing has proven that mice with a WWOX mutation can be cured using a gene therapy treatment. However, funding for the research has been completely exhausted. Due to the extreme rarity of this disease funding is hard to come by and we need caring individuals such as yourself to help the cause.

-AUD $200,000 is required to complete the vital preclinical research and trial and a further,
-AUD $100,000 is required for the preclinical data to be reviewed and documented with the assistance of a third-party organisation to gain regulatory approval to proceed with a clinical trial.

Will you help provide hope for these children and their families by donating to the WWOX foundation?

There is no administrative overhead and each dollar donated goes directly to this life-saving research.


For more information about WWOX diseases and the WWOX Foundation please visit wwox.org

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    WWOX FOUNDATION LIMITED (ABN: 90639202323) is registered with the Australian Charities and Not-for-profits Commission as a Health Promotion Charity. To ensure 100% of your donation goes towards research, you'll have the choice to cover the fees associated with your transaction before submitting. All donations over $2 are tax-deductible.

    Donor Wall108

    Agustín | 311,79 €

    Para [email protected] [email protected] [email protected], especialmente para Zoe. Con mucho cariño de la familia Navarro Olcina

    Elizabeth Roberts | £300

    Kindly raised by Alexandra hospital Physiotherapy department bake sale

    Association | 1.000 €

    Merci aux nombreux donateurs pour Emmy et les enfants

    Carolina Lilla | $2,077.15

    Carol Lilla’s birthday party

    Felix & Aubrey España | $62.62

    Stephen Pratt.....your polar bear plunge was awesome!

    Anonymous | $52.23

    From Marian Holm for Luke & Jack

    Mary Grunewald

    Anonymous | A$104.25

    Mucho ánimo! Toda la suerte del mundo! Va ir todo bien. Irene

    Maecenata Stiftung | A$37,719.50

    Donations from Germany for funding the cure of WWOX diseases!

    Eva Domene

    Raquel Martínez Escuder | 52,17 €

    Para que estos niños tengan la mejor vida posible. De parte de José María, Hernán y Raquel. Biar (Alicante)

    Juan López | 5 €

    Zoe ❤

    Pilar Sanchez | 156,01 €

    De Pilar (Madre Tamy) y Matías para Zoe. Mucha fuerza

    Francisco Javier Molina | 20 €

    Para Zoe, de parte de Molina y Cristina, amigos de la familia, queremos aportar nuestro pequeño granito de arena!

    Blanca | 52,17 €

    Para que cada granito de arena ayude en la lucha de estos niños valientes y en especial para la guerrera Zoe

    Anonymous

    Hormel Foods Corporation | A$52.33

    Abuelita zoe | 100 €

    Con cariño para zoe

    Marina Román | 52,17 €

    De Loli (Denia) para nuestra Zoe.

    Deni Silva | R$209,30

    Das Tias Nina e Maria para o Matheus, força Deni e Cris muita fé que todas as crianças deram curadas.

    Deni Silva | R$1.040,04

    Dinheiro arrecadado da Rifa de Natal feita na clínica de fonoterapia (FonoSim) do Matheus Rodrigues da Silva e venda das reciclagens. Para todas as crianças wwox, amamos a todos.

    Antonia Maestre Hernández | 104,10 €

    Para Zoe, de una amiga común de tus abuelas.

    Juan Miguel Camús Martínez | 550 €

    Para Zoe, de sus tíos de Madrid

    Eric | 1.038,67 €

    For Gabrielle and all of our childrens

    Ralph

    Because we love the Pratt family

    Melanie Miranda | 20 €

    Todo es posible. Mucho ánimo.

    Jeanne Hultgrenn | A$73.10

    In honor of Stphen, Karen, Luke, Jack and Russell Prat

    Papás Zoe | 200 €

    De parte de Mari Paz, Óscar y su familia para Zoe. Muchas gracias

    Mateo Hernández Rubio | 10,64 €

    Para ese apoyo que tanta falta os hace

    Inma Cuenca | A$831.15

    Fuerza desde Alicante para la pequeña guerrera Zoe de parte de Itziar, Juanmi e Inma