GoPI3Ks stands for (Genetic Overgrowth PI3K Support) This group supports those who have been born with a mutation in the growth gene PIK3CA, this is better known as PROS (PIK Related Overgrowth Spectrum) PROS is an umbrella term for a group of rare syndromes characterised by malformations in different tissues such as skin, bone, fatty tissue, vascular & brain tissue. This mutation results in various parts of the body becoming overgrown making daily life more difficult due to various health and social complications, including but not limited to: mobility issues, neurological problems, seizures, progessive disfigurement, chronic pain and weakness. Also paralysis, risk of thrombosis, limited treatment options and a poor long term prognosis.

By donating, you are enabling us to continue helping those who need a little extra financial help due to living with this condition or families who have a child with PROS. We have helped by providing the following and much more: wheelchairs, specialised physio and mental health support. Bespoke breathing equipment, expenses for hopsital appointments that can mean travelling some distance. As well as help with the rising cost of living and respite time for families and adults alike.

More details can be found on our website: https://gopi3ks.com/

Facebook page: GoPI3Ks Facebook page

and Twitter page: @gopi3ks