GoPI3Ks | Gopi3ks (Powered by Donorbox)

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£6,208.60

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225

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£6,000

Goal

GoPI3Ks stands for (Genetic Overgrowth PI3K Support) This group supports those who have been born with a mutation in the growth gene PIK3CA, this is better known as PROS (PIK Related Overgrowth Spectrum) PROS is an umbrella term for a group of rare syndromes characterised by malformations in different tissues such as skin, bone, fatty tissue, vascular & brain tissue. This mutation results in various parts of the body becoming overgrown making daily life more difficult due to various health and social complications, including but not exclusive to, mobility issues and the need for specialised clothing/shoes.

By donating, you are enabling us to continue helping those who need a little extra financial help due to their rare medical condition, please see our section, "how GoPI3Ks has helped" on our website www.gopi3ks.com for more information.

More details can be found on our Facebook page: GoPI3Ks Facebook page

and Twitter page: @gopi3ks