GoPI3Ks stands for (Genetic Overgrowth PI3K Support) This group supports those who have been born with a mutation in the growth gene PIK. This mutation results in parts of the body becoming overgrown, making daily life more difficult due to various health and social complications, including but not exclusive to, mobility issues and the need for specialised clothing/shoes.
Our aim is to raise £5,000 to become a registered charity and then we can start to financially help our members who may need aids or equipment that will allow them to lead a more independent and fulfilling life.
More details can be found on our Facebook page: GoPI3Ks Facebook page
and Twitter page: @gopi3ks