Novel Therapy for NF2

Please help us raise money to end NF2 through gene therapy.

NF2 is a disease that allows tumours to grow on nerves. They can form anywhere, but tend to favour the central nervous system of the brain and spine.  Nerve damage from tumour growth is debilitating for people with NF2 and causes degenerative weakness and total loss of many functions.  A person with NF2 can have a limitless number of tumours to deal with along with degenerative hearing, vision, physical and mental challenges.  Numerous operations, chemotherapies and other treatments compact the disease further.



NF2 BioSolutions is confident that gene/cell/immuno therapy for the disease will be a cure and halt the progression. Here are currently the 4 different novel approaches that we are accelerating:


For the latest research progress update: https://nf2biosolutions.org/gene-therapy-and-nf2/research-initiatives/research-update/


NF2 BioSolutions foundation was created by mostly medical personnels and bioscience researchers that are themselves (or a family member) directly impacted by NF2.  Therefore the motivation, purpose, passion and desire to succeed are paramount.

Other rare disease foundations have successfully funded and pushed for a gene replacement treatment of their rare diseases, and NF2 BioSolutions wants to follow that same model.


Thank you for your support, if you have any questions contact gilles@nf2biosolutions.org


We are a 501(c)3 charitable organization. All donations are tax deductible. Or tax ID # is 83-0940046

Our donors

PR

Paul Romano

SS

Susan Sutherland

donated

$259.92

KM

Kelly Muhney

donated

$104.15

R

Robyn

donated

$52.23

MS

Mike & Jennifer Stauth

donated

$130.11

TR

Terri Rausch

donated

$104.15

J

Janet

MR

Michael Raj

donated

$1,038.73

Hope this will be used for the most promising cure going for human trials

TM

Thomas Morrell

donated

$1,020.30

My wife, Sharon, passed away on 11/16/2022 at age 60 after a life long battle with NF2. Sharon lived life to its fullest regardless of the limitations brought on by NF2. Was a great mother, wife and NF2 advocate. May she RIP with perfect hearing, vision and mobility.

J

Jordan

donated

$36.66

Z

Zhao

donated

$50

JN

James nguyen

donated

$52.32

HS

Harry Shapiro

donated

$100

GR

Gail Rodin

donated

$75

KE

Karshawn Espy

donated

$103.83

C

Cara

X

Xiang

Y

Yuna

donated

$129.71

Thank you for your effort and wish the earlier news about the progress in NF2 research

MR

Michael Raj

ML

Michael LaMarche

donated

$26.19

For the Rebecca Grasso Annual NF2Biosolutions Golf Tournament

GS

George Sotier

donated

$331

YH

Yuna Hu

donated

$129.71

For Adoptive Cell Therapy at University of Manchester UK

LB

Larry & Vickie Buckley

donated

$129.71

SM

Sharon McKenney

donated

$36.54

FS

Florence & Trey Stadler

donated

$103.83

GP

Gloria Popp

donated

$52.07

PL

Patricia Lago-Avery

donated

$103.83

M

Maria

In honor of Melissa Skyer, the fearless and brave woman who I had the honor of calling my friend.

BR

Brian Ross

B

Betsy & Sue

donated

$250

In loving memory of Keith