Novel Therapy for NF2
Please help us raise money to end NF2 through gene therapy.
NF2 is a disease that allows tumours to grow on nerves. They can form anywhere, but tend to favour the central nervous system of the brain and spine. Nerve damage from tumour growth is debilitating for people with NF2 and causes degenerative weakness and total loss of many functions. A person with NF2 can have a limitless number of tumours to deal with along with degenerative hearing, vision, physical and mental challenges. Numerous operations, chemotherapies and other treatments compact the disease further.

NF2 BioSolutions is confident that gene/cell/immuno therapy for the disease will be a cure and halt the progression. Here are currently the 4 different novel approaches that we are accelerating:

For the latest research progress update: https://nf2biosolutions.org/gene-therapy-and-nf2/research-initiatives/research-update/
NF2 BioSolutions foundation was created by mostly medical personnels and bioscience researchers that are themselves (or a family member) directly impacted by NF2. Therefore the motivation, purpose, passion and desire to succeed are paramount.
Other rare disease foundations have successfully funded and pushed for a gene replacement treatment of their rare diseases, and NF2 BioSolutions wants to follow that same model.
Thank you for your support, if you have any questions contact gilles@nf2biosolutions.org
Our donors
PR
Paul Romano
SS
Susan Sutherland
donated
$259.92
KM
Kelly Muhney
donated
$104.15
R
Robyn
donated
$52.23
MS
Mike & Jennifer Stauth
donated
$130.11
TR
Terri Rausch
donated
$104.15
J
Janet
MR
Michael Raj
donated
$1,038.73
Hope this will be used for the most promising cure going for human trials
TM
Thomas Morrell
donated
$1,020.30
My wife, Sharon, passed away on 11/16/2022 at age 60 after a life long battle with NF2. Sharon lived life to its fullest regardless of the limitations brought on by NF2. Was a great mother, wife and NF2 advocate. May she RIP with perfect hearing, vision and mobility.
J
Jordan
donated
$36.66
Z
Zhao
donated
$50
JN
James nguyen
donated
$52.32
HS
Harry Shapiro
donated
$100
GR
Gail Rodin
donated
$75
KE
Karshawn Espy
donated
$103.83
C
Cara
X
Xiang
Y
Yuna
donated
$129.71
Thank you for your effort and wish the earlier news about the progress in NF2 research
MR
Michael Raj
ML
Michael LaMarche
donated
$26.19
For the Rebecca Grasso Annual NF2Biosolutions Golf Tournament
GS
George Sotier
donated
$331
YH
Yuna Hu
donated
$129.71
For Adoptive Cell Therapy at University of Manchester UK
LB
Larry & Vickie Buckley
donated
$129.71
SM
Sharon McKenney
donated
$36.54
FS
Florence & Trey Stadler
donated
$103.83
GP
Gloria Popp
donated
$52.07
PL
Patricia Lago-Avery
donated
$103.83
M
Maria
In honor of Melissa Skyer, the fearless and brave woman who I had the honor of calling my friend.
BR
Brian Ross
B
Betsy & Sue
donated
$250
In loving memory of Keith