Novel Therapy for NF2

Please help us raise money to end NF2 through gene therapy.

NF2 is a disease that allows tumours to grow on nerves. They can form anywhere, but tend to favour the central nervous system of the brain and spine.  Nerve damage from tumour growth is debilitating for people with NF2 and causes degenerative weakness and total loss of many functions.  A person with NF2 can have a limitless number of tumours to deal with along with degenerative hearing, vision, physical and mental challenges.  Numerous operations, chemotherapies and other treatments compact the disease further.



NF2 BioSolutions is confident that gene/cell/immuno therapy for the disease will be a cure and halt the progression. Here are currently the 4 different novel approaches that we are accelerating:


For the latest research progress update: https://nf2biosolutions.org/gene-therapy-and-nf2/research-initiatives/research-update/


NF2 BioSolutions foundation was created by mostly medical personnels and bioscience researchers that are themselves (or a family member) directly impacted by NF2.  Therefore the motivation, purpose, passion and desire to succeed are paramount.

Other rare disease foundations have successfully funded and pushed for a gene replacement treatment of their rare diseases, and NF2 BioSolutions wants to follow that same model.


Thank you for your support, if you have any questions contact gilles@nf2biosolutions.org


We are a 501(c)3 charitable organization. All donations are tax deductible. Or tax ID # is 83-0940046

Our donors

J

Justin

donated

$52.07

In memory of Erin Bernadette Malone

BD

Bonita Dubeck

donated

$102.04

AB

Anne Barry

donated

$100

In special memory of Erin Jensen Malone, a beautiful and brave soul.

SK

Shirley Kreps

donated

$52.07

In memory of Eric Fischer on his birthday from Grandma.

SC

Susan Clark

donated

$25

We're donating in memory of our nephew & cousin, Eric Fischer...Happy Heavenly Birthday, Bud!!!

DW

Danielle Weedo-Pires

donated

$77.95

Cure NFe

K

Karen

donated

$103.83

ME

Melva Exner

donated

$103.83

DE

Diane and Neil Exter

donated

$1,800

Thanks for participating in the TRV event. Such an inspiring story.

NS

Neil Sheppard

donated

$129.71

With all my wishes for a tremendous outcome for your efforts and an end to this disease

T

Tiffany

donated

$21.01

NB

Nachum & Hannah Baruchi

This donation is on behalf of our granddaughter Tori Baruchi

LH

Liz Halloran

donated

$207.35

Supporting your great work on behalf of my wonderful nieces, Lizzie and Alanna Halloran

JS

Jeff Schroeder

donated

$500

A

Anonymous

Sara gave up on her physical Christmas gift in favor of a donation.

EH

Eve Henwood

donated

$569.67

Our family decided to give to a charity this year instead of exchanging gifts for our annual cousins' Pollyanna. This donation is in honor of our sweet nephew, AJ Henwood. We love you, AJ! ~Eve and Eric Henwood

SS

Samantha Schulze

donated

$103.83

AS

Arnita Michelle Smith

donated

$103.83

For gene therapy research in memory of Lanita Dawn McGee, Cincinnati, Ohio

JH

Jocelyn Harris

donated

$77.95

NF2 Research in memory of Lanita Dawn McGee, Cincinnati, OH.

EL

Erin & Richard Louis

Donation made in memory of Margaret Holland

TD

Tara Desmond

donated

$52.07

CC

Chung Chiang

For Isadora Isaacs

SM

Sandy Mellina

AS

Adam Schertzer

K

Karim

donated

$129.71

For all kids and parents : Keep the faith.

S

Sebastian

donated

$62.42

B

Brock

donated

$25

This donation is in honor of Victoria Cooke and her Family!

DO

Deian Owen

donated

$1,035.51

WH

William Henwood

donated

$1,035.51

D

Dunia

In memory of Margaret Kirk Bragg Holland