Novel Therapy for NF2

Please help us raise money to end NF2 through gene therapy.

NF2 is a disease that allows tumours to grow on nerves. They can form anywhere, but tend to favour the central nervous system of the brain and spine.  Nerve damage from tumour growth is debilitating for people with NF2 and causes degenerative weakness and total loss of many functions.  A person with NF2 can have a limitless number of tumours to deal with along with degenerative hearing, vision, physical and mental challenges.  Numerous operations, chemotherapies and other treatments compact the disease further.



NF2 BioSolutions is confident that gene/cell/immuno therapy for the disease will be a cure and halt the progression. Here are currently the 4 different novel approaches that we are accelerating:


For the latest research progress update: https://nf2biosolutions.org/gene-therapy-and-nf2/research-initiatives/research-update/


NF2 BioSolutions foundation was created by mostly medical personnels and bioscience researchers that are themselves (or a family member) directly impacted by NF2.  Therefore the motivation, purpose, passion and desire to succeed are paramount.

Other rare disease foundations have successfully funded and pushed for a gene replacement treatment of their rare diseases, and NF2 BioSolutions wants to follow that same model.


Thank you for your support, if you have any questions contact gilles@nf2biosolutions.org


We are a 501(c)3 charitable organization. All donations are tax deductible. Or tax ID # is 83-0940046

Our donors

SF

STEPHEN FISCHER

donated

$258.57

our son Eric and our grandson Maxwell both have NF2. Eric has and ABI and has had multiple surgeries. Maxwell has been tested but at 4 years old shows no signs yet. Monitoring will begin soon. Steve & Barb Fischer

P

Prakash

donated

$516.84

DO

Deian Owen

donated

$250

Thank you for your amazing efforts ❤️

SL

Anonymous

donated

$77.79

For the Henwood Family - Go Navy!

AF

Adam Ford

donated

$206.92

CM

Chris Mason

donated

$258.57

My thoughts are with you all!

LL

Lawrence Lupus

donated

$77.79

For AJ, by Larry and Conni Lupus

JM

Jimmy Moore

A

Ansumana

donated

$20.97

D

Diane

donated

$103.62

CB

Craig Baumann

donated

$3,000

SM

Stefania Mostaccioli

donated

$125

from Italian NF2 & Schwannomatosis Association

SM

Stefania Mostaccioli

donated

$1,000

from the Italian NF2&Schwannomatosis Association

ML

Mary Lacy

donated

$300

For A.J. Henwood from your URA 10U baseball friends. We’re all fighting with you!

C

Charlotte

SM

Susan Joan Mauriello-Orlando

LW

Lawrence Williams

donated

$206.92

FOR A.J. HENWOOD - NEVER GIVE UP! AUGHT ONE!

KS

Kurt Sommer

donated

$125

RK

Rina Kapoor

donated

$51.96

To help A.J. Henwood from our community . Please find a cure . God bless.

LA

Luisa Abreu Santos

donated

$51.96

JG

Jean George

donated

$516.84

Dear Nicole, I hope this helps a little bit for research in NF2. Love, Aunt Jeanette

MZ

ZEITZ

donated

$103.62

EW

Eric Walter

donated

$125

So inspired by how this is coming together! Can't wait to see where it goes!

TD

The D'Iorios

donated

$103.62

Heroic endeavor by this NF2 team to make change happen.

CF

GivingTuesday Fundraiser for NF2 Brain Tumour Gene Therapy Cure

donated

€51.92

MD

Molly Doi

donated

$51.96

In honor of Liv Atlan

MR

Margaret Reynolds

donated

$1,405

Margaret’s Facebook Fundriaser

JV

Jill Velez

donated

$1,040

Jill's facebook birthday fundraiser.

NH

Anonymous

donated

$77.79

In loving memory of Susan Glassman, your family loved you deeply.

MR

Margaret Reynolds

My husband Henry Hipp and I are proud to support NF2 BioSolutions with a recurring monthly donation.