Novel Therapy for NF2
Please help us raise money to end NF2 through gene therapy.
NF2 is a disease that allows tumours to grow on nerves. They can form anywhere, but tend to favour the central nervous system of the brain and spine. Nerve damage from tumour growth is debilitating for people with NF2 and causes degenerative weakness and total loss of many functions. A person with NF2 can have a limitless number of tumours to deal with along with degenerative hearing, vision, physical and mental challenges. Numerous operations, chemotherapies and other treatments compact the disease further.

NF2 BioSolutions is confident that gene/cell/immuno therapy for the disease will be a cure and halt the progression. Here are currently the 4 different novel approaches that we are accelerating:

For the latest research progress update: https://nf2biosolutions.org/gene-therapy-and-nf2/research-initiatives/research-update/
NF2 BioSolutions foundation was created by mostly medical personnels and bioscience researchers that are themselves (or a family member) directly impacted by NF2. Therefore the motivation, purpose, passion and desire to succeed are paramount.
Other rare disease foundations have successfully funded and pushed for a gene replacement treatment of their rare diseases, and NF2 BioSolutions wants to follow that same model.
Thank you for your support, if you have any questions contact gilles@nf2biosolutions.org
Our donors
SF
STEPHEN FISCHER
donated
$258.57
our son Eric and our grandson Maxwell both have NF2. Eric has and ABI and has had multiple surgeries. Maxwell has been tested but at 4 years old shows no signs yet. Monitoring will begin soon. Steve & Barb Fischer
P
Prakash
donated
$516.84
DO
Deian Owen
donated
$250
Thank you for your amazing efforts ❤️
SL
Anonymous
donated
$77.79
For the Henwood Family - Go Navy!
AF
Adam Ford
donated
$206.92
CM
Chris Mason
donated
$258.57
My thoughts are with you all!
LL
Lawrence Lupus
donated
$77.79
For AJ, by Larry and Conni Lupus
JM
Jimmy Moore
A
Ansumana
donated
$20.97
D
Diane
donated
$103.62
CB
Craig Baumann
donated
$3,000
SM
Stefania Mostaccioli
donated
$125
from Italian NF2 & Schwannomatosis Association
SM
Stefania Mostaccioli
donated
$1,000
from the Italian NF2&Schwannomatosis Association
ML
Mary Lacy
donated
$300
For A.J. Henwood from your URA 10U baseball friends. We’re all fighting with you!
C
Charlotte
SM
Susan Joan Mauriello-Orlando
LW
Lawrence Williams
donated
$206.92
FOR A.J. HENWOOD - NEVER GIVE UP! AUGHT ONE!
KS
Kurt Sommer
donated
$125
RK
Rina Kapoor
donated
$51.96
To help A.J. Henwood from our community . Please find a cure . God bless.
LA
Luisa Abreu Santos
donated
$51.96
JG
Jean George
donated
$516.84
Dear Nicole, I hope this helps a little bit for research in NF2. Love, Aunt Jeanette
MZ
ZEITZ
donated
$103.62
EW
Eric Walter
donated
$125
So inspired by how this is coming together! Can't wait to see where it goes!
TD
The D'Iorios
donated
$103.62
Heroic endeavor by this NF2 team to make change happen.
CF
GivingTuesday Fundraiser for NF2 Brain Tumour Gene Therapy Cure
donated
€51.92
MD
Molly Doi
donated
$51.96
In honor of Liv Atlan
MR
Margaret Reynolds
donated
$1,405
Margaret’s Facebook Fundriaser
JV
Jill Velez
donated
$1,040
Jill's facebook birthday fundraiser.
NH
Anonymous
donated
$77.79
In loving memory of Susan Glassman, your family loved you deeply.
MR
Margaret Reynolds
My husband Henry Hipp and I are proud to support NF2 BioSolutions with a recurring monthly donation.